People's Stories

On this page we will try and bring you information from real people about their experiences of dementia whether they have been directly effected or someone close to them has.  We hope that you find these links to people's stories and forums useful.

We will be adding information to this page as we find it, so if you have a link to people's stories that you think we should add please let us know, contact jackie.newey(at)pavo.org.uk.

Alzheimer's Society's Your story - is a place for you to share your experiences of living with dementia.

Dementia UK Carers Stories

Talking Point - Alzheimer's Society's online forum

Mental Health Foundation - The reality of living with dementia - three women who have been diagnosed with dementia speak about their experiences and coping strategies.

John's Campaign - for the right to stay with people with dementia in hospital
The effect of a hospital stay can be catastrophic for a person with dementia — as it was for the man whose experience prompted this campaign. John's Campaign calls for the families and carers of people with dementia to have the same rights as the parents of sick children, and be allowed to remain with them in hospital for as many hours of the day and night as is humanly possible.

Dementia Diaries Project is a series of audio diaries. The project has been featured on BBC radio and television, and in national and local newspapers, and more than 3.8 million people have seen it on Twitter (#dementiadiaries).

Dementia Blogs

Here we will try and provide you with some information about dementia blogs.  You may want to just read some of these to find out more about dementia or you may be interested yourself in joining the debates on these blogs.  We hope you find this useful.

We will be adding these blogs as we find them so please get in touch if you have one you think we should add, email jackie.newey(at)pavo.org.uk.

Alistair Burns Blog.  Alistair is the National Clinical Director for Dementia for England

Dementia Friends Blog.  Dementia Friends aims to make everyday life better for people with dementia by changing the way the nation thinks, talks and acts.

Jean Nowell, the Alzheimer's Society Dementia Support Worker for Brecon gave a presentation at the recent dementia-themed Powys Confidence & Equality Group Meeting.  More information here

Dementia Queen Blog.  Blogging about dementia: issues, insight with a dash of humor on the side.

Hannah Davies' dementia blog in the South Wales Evening Post. Hannah blogs about her experiences as a carer of her mother who has dementia.

 

Powys Mental Health Blog - you can read posts about dementia:

Memory boxes - the Ystradgynlais story - how memory boxes help patients on a ward at Ystradgynlais hospital.

Memory boxes - connecting with the past - a wonderful dementia-friendly scheme run by Brecknock Museum & Art Gallery in Brecon.

Dementia Supportive Communities event - the North - all about the latest developments in North Powys.

Link to presentations on the day: Karen Rodenburg - Alzheimer's Society, Heather Wenban - Powys Teaching Health Board.

Re-Live Theatre @ Dementia Supportive Communities event Nov 2015 - people with dementia inspired discussion around new initiatives in Powys.

Link to presentations on the day: Ageing Well in Wales, Brecon & Dementia Friendly Community, Powys teaching Health Board, Powys County Council, Powys Association of Voluntary Organisations, Harold Proctor, Powys Befrienders, pledges, summing up.

Dementia Awareness Week 2015 - with an update about dementia services in Powys from Powys teaching Health Board, the Alzheimer's Society and Brecon Dementia Friendly Community.

TED and a dementia story - read about one daughter's approach to improving the quality of life for her father who has dementia.

Caring for dementia patients - what's best? - a piece about the Fan Gorau older people's assessment unit in Newtown, Powys.

Dementia - who is blogging about it? - an introduction and links to some of the best dementia blogs out there on the internet.

Dyfed-Powys Police - dementia friendly and neighbourhood friendly - find out how Dyfed-Powys Police have been working to become dementia friendly in Powys.

Dementia Champions - learning more about various dementia initiatives in Powys.

Dementia supportive communities tackling stigma in Powys - sometimes it's the small things that can really change our lives - the launch of the Dementia Friends' initiative in Powys.

Dementia Friendly Brecon videos

The first is about building a dementia friendly community.

This one is about Music & Memories.

Angen help ar frys

Survey about Farming Life and Wellbeing from @CRPowys and @Agecymrupowys to help them develop their services to me… twitter.com/i/web/status/1…

New job opportunity with Credu based in #Llandrindod #Powys #Carers @CreduCarers please RT or share with anyone yo… twitter.com/i/web/status/1…

We currently have a job opportunity for a Centre Assistant at Ponthafren Association. If you would like to download… twitter.com/i/web/status/1…

latest news

Brecon & District Mind - vacancy

8 Awst 2018

Community Well-being Worker Hours:  16 hrs per week Salary:  £18,870 pro rata Location:  Brecon and outreach centres Contract: Fixed term to March 2019 subject to further funding Contact:  Michael Power on 01874 611529 or email info(at)breconmind.org.uk Closing date Fr

events

Driving Range at the Golf Club

Mawrth 21 Awst 2018

Mid Powys Mind

Celf-Able Art Group

Mercher 22 Awst 2018

Caersws

Garden Open Day for Charity

Sadwrn 25 Awst 2018

Ponthafren, Newtown

A walk around the Rock Park

Mawrth 28 Awst 2018

Mid Powys Mind

Tai Chi (Mondays)

Llun 3 Medi 2018

Llandrindod Wells

Dementia Friends Dyfi Valley (first Tuesday of the month)

Mawrth 4 Medi 2018

Memory Cafe - Machynlleth

Life Story Dementia Training

Mercher 5 Medi 2018

Brecon

Celf-Able Art Group

Mercher 5 Medi 2018

Newtown

Anger Management Training (5th, 12th & 19th September)

Mercher 5 Medi 2018

Mid Powys Mind

Youth Group Mid Powys Mind (every Thursday)

Iau 6 Medi 2018

Llandrindod Wells

A Disorder for Everyone!

Iau 6 Medi 2018

Challenging the culture of psychiatric diagnosis: London conference

My Generation (8 weeks)

Gwener 7 Medi 2018

Mid Powys Mind (Presteigne)

Budgeting Skills

Llun 10 Medi 2018

Mid Powys Mind

Children Who Self Harm (one day course)

Mawrth 11 Medi 2018

Newtown

Powys Community Health Council - Full Meeting

Mawrth 11 Medi 2018

Llandrindod Wells

Mums Matter new Autumn group - Rhayader

Mawrth 11 Medi 2018

The Autumn group for new Mums run by Mid Powys Mind.

Celf-Able Art Group

Mercher 12 Medi 2018

Machynlleth

Mums Matter new Autumn group - Knighton

Mercher 12 Medi 2018

A group for new Mums run by Mid Powys Mind.

Here I Am: Focusing workshop with Elizabeth Halls

Sadwrn 15 Medi 2018

A Bleddfa Centre event near Knighton in East Powys

Celf-Able Art Group

Mawrth 18 Medi 2018

Llanfair Caereinion

Celf-Able Art Group

Iau 20 Medi 2018

Guilsfield

Dementia Friend Training Session

Iau 20 Medi 2018

Brecon

Mental Health Awareness Course

Llun 24 Medi 2018

Mid Powys Mind

Building Self Worth (3 week course)

Mercher 26 Medi 2018

Mid Powys Mind

Celf-Able Art Group

Mercher 26 Medi 2018

Caersws

Tai Chi (Mondays)

Llun 1 Hydref 2018

Llandrindod Wells

Someone's Home

Mawrth 2 Hydref 2018

Hay Theatre Production in Llandrindod Wells

Celf-Able Art Group

Mercher 3 Hydref 2018

Newtown

Adult Safeguarding Awareness Training

Mawrth 9 Hydref 2018

Newtown

Montgomeryshire Local Committee

Mawrth 9 Hydref 2018

Powys Community Health Council

Celf-Able Art Group

Mercher 10 Hydref 2018

Machynlleth

Radnorshire & Brecknock Local Committee

Iau 11 Hydref 2018

Powys Community Health Council

Inward Journey - Focusing workshop with Elizabeth Halls

Sadwrn 13 Hydref 2018

A Bleddfa Centre event near Knighton in East Powys

Celf-Able Art Group

Mawrth 16 Hydref 2018

Llanfair Caereinion

Stress & Anxiety Management Course (3 weeks)

Mercher 17 Hydref 2018

Knighton

Celf-Able Art Group

Iau 18 Hydref 2018

Guilsfield

Dementia Awareness Training

Iau 18 Hydref 2018

Llandrindod Wells

Dementia Friend Training Session

Gwener 19 Hydref 2018

Ystradgynlais

Celf-Able Art Group

Mercher 24 Hydref 2018

Caersws

Challenging Behaviour in Dementia Training

Mawrth 30 Hydref 2018

Brecon

THRIVE Course (5 weeks)

Gwener 2 Tachwedd 2018

Llandrindod Wells

Adult Safeguarding Awareness Training

Llun 5 Tachwedd 2018

Llandrindod Wells

Tai Chi (Mondays)

Llun 5 Tachwedd 2018

Llandrindod Wells

Celf-Able Art Group

Mercher 7 Tachwedd 2018

Newtown

PAVO 2018 Conference and AGM

Mawrth 13 Tachwedd 2018

Cefn Lea Conference Centre, Newtown

Celf-Able Art Group

Mercher 14 Tachwedd 2018

Machynlleth

Managing Depression Course (3 weeks)

Mercher 14 Tachwedd 2018

Llandrindod Wells

Celf-Able Art Group

Mawrth 20 Tachwedd 2018

Llanfair Caereinion

Celf-Able Art Group

Iau 22 Tachwedd 2018

Guilsfield

Challenging Behaviour and Autistic Spectrum Disorder Training

Iau 22 Tachwedd 2018

Llandrindod Wells

Mental Health First Aid Course (2 days)

Mawrth 27 Tachwedd 2018

Llandrindod Wells

Dols (Deprivation of Liberty Safeguarding) Legal Guidance Training

Mercher 28 Tachwedd 2018

Llandrindod Wells

Celf-Able Art Group

Mercher 28 Tachwedd 2018

Caersws

Domestic Abuse (Adults) Training

Mawrth 4 Rhagfyr 2018

Llandrindod Wells

Powys Community Health Council - Full Council

Mawrth 4 Rhagfyr 2018

Llandrindod Wells

Mental Health Awareness (half day training)

Mawrth 4 Rhagfyr 2018

Newtown

Celf-Able Art Group

Mercher 5 Rhagfyr 2018

Newtown

Celf-Able Art Group

Mercher 12 Rhagfyr 2018

Machynlleth

Celf-Able Art Group

Mawrth 18 Rhagfyr 2018

Llanfair Caereinion

Celf-Able Art Group

Iau 20 Rhagfyr 2018

Guilsfield

Dementia Awareness Training

Mawrth 5 Chwefror 2019

Newtown

Adult Safeguarding Awareness Training

Mercher 13 Chwefror 2019

Brecon

Children Who Self Harm (one day course)

Gwener 15 Chwefror 2019

Brecon

Challenging Behaviour in Dementia Training

Iau 21 Chwefror 2019

Newtown

Life Story Dementia Training

Iau 7 Mawrth 2019

Newtown
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