People's Stories

On this page we will try and bring you information from real people about their experiences of dementia whether they have been directly effected or someone close to them has.  We hope that you find these links to people's stories and forums useful.

We will be adding information to this page as we find it, so if you have a link to people's stories that you think we should add please let us know, contact jackie.newey(at)pavo.org.uk.

Alzheimer's Society's Your story - is a place for you to share your experiences of living with dementia.

Dementia UK Carers Stories

Talking Point - Alzheimer's Society's online forum

Mental Health Foundation - The reality of living with dementia - three women who have been diagnosed with dementia speak about their experiences and coping strategies.

John's Campaign - for the right to stay with people with dementia in hospital
The effect of a hospital stay can be catastrophic for a person with dementia — as it was for the man whose experience prompted this campaign. John's Campaign calls for the families and carers of people with dementia to have the same rights as the parents of sick children, and be allowed to remain with them in hospital for as many hours of the day and night as is humanly possible.

Dementia Diaries Project is a series of audio diaries. The project has been featured on BBC radio and television, and in national and local newspapers, and more than 3.8 million people have seen it on Twitter (#dementiadiaries).

Dementia Blogs

Here we will try and provide you with some information about dementia blogs.  You may want to just read some of these to find out more about dementia or you may be interested yourself in joining the debates on these blogs.  We hope you find this useful.

We will be adding these blogs as we find them so please get in touch if you have one you think we should add, email jackie.newey(at)pavo.org.uk.

Alistair Burns Blog.  Alistair is the National Clinical Director for Dementia for England

Dementia Friends Blog.  Dementia Friends aims to make everyday life better for people with dementia by changing the way the nation thinks, talks and acts.

Jean Nowell, the Alzheimer's Society Dementia Support Worker for Brecon gave a presentation at the recent dementia-themed Powys Confidence & Equality Group Meeting.  More information here

Dementia Queen Blog.  Blogging about dementia: issues, insight with a dash of humor on the side.

Hannah Davies' dementia blog in the South Wales Evening Post. Hannah blogs about her experiences as a carer of her mother who has dementia.

 

Powys Mental Health Blog - you can read posts about dementia:

Memory boxes - the Ystradgynlais story - how memory boxes help patients on a ward at Ystradgynlais hospital.

Memory boxes - connecting with the past - a wonderful dementia-friendly scheme run by Brecknock Museum & Art Gallery in Brecon.

Dementia Supportive Communities event - the North - all about the latest developments in North Powys.

Link to presentations on the day: Karen Rodenburg - Alzheimer's Society, Heather Wenban - Powys Teaching Health Board.

Re-Live Theatre @ Dementia Supportive Communities event Nov 2015 - people with dementia inspired discussion around new initiatives in Powys.

Link to presentations on the day: Ageing Well in Wales, Brecon & Dementia Friendly Community, Powys teaching Health Board, Powys County Council, Powys Association of Voluntary Organisations, Harold Proctor, Powys Befrienders, pledges, summing up.

Dementia Awareness Week 2015 - with an update about dementia services in Powys from Powys teaching Health Board, the Alzheimer's Society and Brecon Dementia Friendly Community.

TED and a dementia story - read about one daughter's approach to improving the quality of life for her father who has dementia.

Caring for dementia patients - what's best? - a piece about the Fan Gorau older people's assessment unit in Newtown, Powys.

Dementia - who is blogging about it? - an introduction and links to some of the best dementia blogs out there on the internet.

Dyfed-Powys Police - dementia friendly and neighbourhood friendly - find out how Dyfed-Powys Police have been working to become dementia friendly in Powys.

Dementia Champions - learning more about various dementia initiatives in Powys.

Dementia supportive communities tackling stigma in Powys - sometimes it's the small things that can really change our lives - the launch of the Dementia Friends' initiative in Powys.

Dementia Friendly Brecon videos

The first is about building a dementia friendly community.

This one is about Music & Memories.

Angen help ar frys

Don't forget to sign up to @TREDCymru's review into the Eating Disorder services review. There is an online survey… twitter.com/i/web/status/9…

Excellent, much needed study: Experiencing mental health diagnosis - a systematic review of qual studies, 78 papers… twitter.com/i/web/status/9…

Improving our 'Child to Adult Eating Disorder Services in Wales' transition process. @1000LivesWales is holding a… twitter.com/i/web/status/9…

latest news

Mental Health Services in Powys survey

5 Chwefror 2018

What do you think of mental health services in Powys? Complete a short survey to feed in your views to the reps sitting on the Powys Mental Health Planning & Development Partnership.

events

T'ai Chi

Llun 23 Ebrill 2018

Mid Powys Mind

Celf-Able Art Group

Mawrth 24 Ebrill 2018

Llanfair Caereinion

New Pathways SURE for Mental Health

Mercher 25 Ebrill 2018

Interactive Conference 2018, Wrexham

Compassionate Mental Health Conference (2 days)

Mercher 25 Ebrill 2018

Brecon, Powys

Talk on Natural Health and Wellbeing

Mercher 25 Ebrill 2018

Tania Dolley explores the positive mental and physical benefits of connecting with nature and the outdoors (Brecon & District Mind)

Visit to Abbey-Cwm-Hir Hall, Llandrindod Wells

Iau 26 Ebrill 2018

Ponthafren Association

80's Disco Night

Sadwrn 28 Ebrill 2018

Newtown

Sculpture Workshop 1 with Geraint Edwards

Mawrth 1 Mai 2018

Mid Powys Mind

Celf-Able Art Group

Mercher 2 Mai 2018

Newtown

Smartphone Workshop

Mercher 2 Mai 2018

Ponthafren, Newtown

Become a Dementia Friend

Mawrth 8 Mai 2018

Newtown

Celf-Able Art Group

Mercher 9 Mai 2018

Machynlleth

Mental Health Today Wales 2018

Iau 10 Mai 2018

Conference in Cardiff

Coffee Morning

Sul 13 Mai 2018

Dementia Friendly Newtown

Celf-Able Art Group

Mawrth 15 Mai 2018

Llanfair Caereinion

Networking Event - Mental Health Awareness Week

Mercher 16 Mai 2018

Llandrindod Wells

Celf-Able Art Group

Iau 17 Mai 2018

Guilsfield

Ink Drawing 2 with Sorell Matei

Iau 17 Mai 2018

Mid Powys Mind

SafeTALK:Suicide Alertness Course for Everyone

Llun 21 Mai 2018

Bracken Trust, Llandrindod Wells

Celf-Able Art Group

Mercher 23 Mai 2018

Caersws

Managing Depression Course (3 weeks, Mondays)

Llun 4 Mehefin 2018

Presteigne

THRIVE Course (5 weeks, Mondays)

Llun 4 Mehefin 2018

Mid Powys Mind

Celf-Able Art Group

Mercher 6 Mehefin 2018

Newtown

Community Workers Meetings (Montgomeryshire)

Mercher 6 Mehefin 2018

Credu (formerly Powys Carers)

Celf-Able Art Group

Mercher 13 Mehefin 2018

Machynlleth

Celf-Able Art Group

Mawrth 19 Mehefin 2018

Llanfair Caereinion

Sculpture Workshop 2 with Geraint Edwards

Mawrth 19 Mehefin 2018

Mid Powys Mind

Celf-Able Art Group

Iau 21 Mehefin 2018

Guilsfield

Stencil Techniques 1 in Painting with Sorell Matei

Iau 21 Mehefin 2018

Mid Powys Mind

Celf-Able Art Group

Mercher 27 Mehefin 2018

Caersws

Mental Health First Aid Course (2 days)

Mawrth 3 Gorffennaf 2018

Presteigne

Celf-Able Art Group

Mercher 4 Gorffennaf 2018

Newtown

Celf-Able Art Group

Mercher 11 Gorffennaf 2018

Machynlleth

Stencil Techniques 2 in Painting with Sorell Matei

Iau 12 Gorffennaf 2018

Mid Powys Mind

Celf-Able Art Group

Mawrth 17 Gorffennaf 2018

Llanfair Caereinion

Sculpture Workshop 3 with Geraint Edwards

Mawrth 17 Gorffennaf 2018

Mid Powys Mind

Celf-Able Art Group

Iau 19 Gorffennaf 2018

Guilsfield

Celf-Able Art Group

Mercher 25 Gorffennaf 2018

Caersws
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