People's Stories

On this page we will try and bring you information from real people about their experiences of dementia whether they have been directly effected or someone close to them has.  We hope that you find these links to people's stories and forums useful.

We will be adding information to this page as we find it, so if you have a link to people's stories that you think we should add please let us know, contact jackie.newey(at)pavo.org.uk.

Alzheimer's Society's Your story - is a place for you to share your experiences of living with dementia.

Dementia UK Carers Stories

Talking Point - Alzheimer's Society's online forum

Mental Health Foundation - The reality of living with dementia - three women who have been diagnosed with dementia speak about their experiences and coping strategies.

John's Campaign - for the right to stay with people with dementia in hospital
The effect of a hospital stay can be catastrophic for a person with dementia — as it was for the man whose experience prompted this campaign. John's Campaign calls for the families and carers of people with dementia to have the same rights as the parents of sick children, and be allowed to remain with them in hospital for as many hours of the day and night as is humanly possible.

Dementia Diaries Project is a series of audio diaries. The project has been featured on BBC radio and television, and in national and local newspapers, and more than 3.8 million people have seen it on Twitter (#dementiadiaries).

Dementia Blogs

Here we will try and provide you with some information about dementia blogs.  You may want to just read some of these to find out more about dementia or you may be interested yourself in joining the debates on these blogs.  We hope you find this useful.

We will be adding these blogs as we find them so please get in touch if you have one you think we should add, email jackie.newey(at)pavo.org.uk.

Alistair Burns Blog.  Alistair is the National Clinical Director for Dementia for England

Dementia Friends Blog.  Dementia Friends aims to make everyday life better for people with dementia by changing the way the nation thinks, talks and acts.

Jean Nowell, the Alzheimer's Society Dementia Support Worker for Brecon gave a presentation at the recent dementia-themed Powys Confidence & Equality Group Meeting.  More information here

Dementia Queen Blog.  Blogging about dementia: issues, insight with a dash of humor on the side.

Hannah Davies' dementia blog in the South Wales Evening Post. Hannah blogs about her experiences as a carer of her mother who has dementia.

 

Powys Mental Health Blog - you can read posts about dementia:

Memory boxes - the Ystradgynlais story - how memory boxes help patients on a ward at Ystradgynlais hospital.

Memory boxes - connecting with the past - a wonderful dementia-friendly scheme run by Brecknock Museum & Art Gallery in Brecon.

Dementia Supportive Communities event - the North - all about the latest developments in North Powys.

Link to presentations on the day: Karen Rodenburg - Alzheimer's Society, Heather Wenban - Powys Teaching Health Board.

Re-Live Theatre @ Dementia Supportive Communities event Nov 2015 - people with dementia inspired discussion around new initiatives in Powys.

Link to presentations on the day: Ageing Well in Wales, Brecon & Dementia Friendly Community, Powys teaching Health Board, Powys County Council, Powys Association of Voluntary Organisations, Harold Proctor, Powys Befrienders, pledges, summing up.

Dementia Awareness Week 2015 - with an update about dementia services in Powys from Powys teaching Health Board, the Alzheimer's Society and Brecon Dementia Friendly Community.

TED and a dementia story - read about one daughter's approach to improving the quality of life for her father who has dementia.

Caring for dementia patients - what's best? - a piece about the Fan Gorau older people's assessment unit in Newtown, Powys.

Dementia - who is blogging about it? - an introduction and links to some of the best dementia blogs out there on the internet.

Dyfed-Powys Police - dementia friendly and neighbourhood friendly - find out how Dyfed-Powys Police have been working to become dementia friendly in Powys.

Dementia Champions - learning more about various dementia initiatives in Powys.

Dementia supportive communities tackling stigma in Powys - sometimes it's the small things that can really change our lives - the launch of the Dementia Friends' initiative in Powys.

Dementia Friendly Brecon videos

The first is about building a dementia friendly community.

This one is about Music & Memories.

Get Help Now

Here's how Consultant Child Psychologist Dr Sue Evans introduced the Finnish @KivaSchool anti-bullying scheme to sc… twitter.com/i/web/status/1…

Shooting the first scenes for our LGBT short film we’re making with @Iris_Outreach. Shame about the weather after a… twitter.com/i/web/status/1…

Pop in to Welshpool Town Hall today (10 July) until 8.30pm to find out more about the NHS Future Fit proposals. I’m… twitter.com/i/web/status/1…

latest news

Mind Brecon & District - 2 vacancies

17 July 2018

Family Well-being Worker Hours:  16 hrs per week Salary:  £18,870 pro rata Location:  Brecon and district area, based in Brecon Contact :  Zoe Porter/Clare Searle on 01874 611529 or email info@breconmind.org.uk Community Well-being Worker Hours:  10 hrs per week Salar

events

Celf-Able Art Group

Wednesday 25 July 2018

Caersws

SOS (Silence of Suicide)

Friday 27 July 2018

Brecon Mind

Dementia Workshop

Monday 30 July 2018

A PAVO event in Llandrindod Wells to discuss engagement with local communities to shape future dementia services in Powys.

Youth Group Mid Powys Mind (every Thursday)

Thursday 2 August 2018

Llandrindod Wells

Dementia Friends Dyfi Valley (first Tuesday of the month)

Tuesday 7 August 2018

Memory Cafe - Machynlleth

Dementia Friend Training Session

Tuesday 14 August 2018

Ystradgynlais

Dementia Friends Dyfi Valley (first Tuesday of the month)

Tuesday 4 September 2018

Memory Cafe - Machynlleth

Life Story Dementia Training

Wednesday 5 September 2018

Brecon

Youth Group Mid Powys Mind (every Thursday)

Thursday 6 September 2018

Llandrindod Wells

Children Who Self Harm (one day course)

Tuesday 11 September 2018

Newtown

Powys Community Health Council - Full Meeting

Tuesday 11 September 2018

Llandrindod Wells

Here I Am: Focusing workshop with Elizabeth Halls

Saturday 15 September 2018

A Bleddfa Centre event near Knighton in East Powys

Dementia Friend Training Session

Thursday 20 September 2018

Brecon

Montgomeryshire Local Committee

Tuesday 9 October 2018

Powys Community Health Council

Radnorshire & Brecknock Local Committee

Thursday 11 October 2018

Powys Community Health Council

Inward Journey - Focusing workshop with Elizabeth Halls

Saturday 13 October 2018

A Bleddfa Centre event near Knighton in East Powys

Dementia Awareness Training

Thursday 18 October 2018

Llandrindod Wells

Dementia Friend Training Session

Friday 19 October 2018

Ystradgynlais

Challenging Behaviour in Dementia Training

Tuesday 30 October 2018

Brecon

Challenging Behaviour and Autistic Spectrum Disorder Training

Thursday 22 November 2018

Llandrindod Wells

Dols (Deprivation of Liberty Safeguarding) Legal Guidance Training

Wednesday 28 November 2018

Llandrindod Wells

Domestic Abuse (Adults) Training

Tuesday 4 December 2018

Llandrindod Wells

Powys Community Health Council - Full Council

Tuesday 4 December 2018

Llandrindod Wells

Mental Health Awareness (half day training)

Tuesday 4 December 2018

Newtown

Dementia Awareness Training

Tuesday 5 February 2019

Newtown

Children Who Self Harm (one day course)

Friday 15 February 2019

Brecon

Challenging Behaviour in Dementia Training

Thursday 21 February 2019

Newtown

Life Story Dementia Training

Thursday 7 March 2019

Newtown
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