People's Stories

On this page we will try and bring you information from real people about their experiences of dementia whether they have been directly effected or someone close to them has.  We hope that you find these links to people's stories and forums useful.

We will be adding information to this page as we find it, so if you have a link to people's stories that you think we should add please let us know, contact jackie.newey(at)pavo.org.uk.

Alzheimer's Society's Your story - is a place for you to share your experiences of living with dementia.

Dementia UK Carers Stories

Talking Point - Alzheimer's Society's online forum

Mental Health Foundation - The reality of living with dementia - three women who have been diagnosed with dementia speak about their experiences and coping strategies.

John's Campaign - for the right to stay with people with dementia in hospital
The effect of a hospital stay can be catastrophic for a person with dementia — as it was for the man whose experience prompted this campaign. John's Campaign calls for the families and carers of people with dementia to have the same rights as the parents of sick children, and be allowed to remain with them in hospital for as many hours of the day and night as is humanly possible.

Dementia Diaries Project is a series of audio diaries. The project has been featured on BBC radio and television, and in national and local newspapers, and more than 3.8 million people have seen it on Twitter (#dementiadiaries).

Dementia Blogs

Here we will try and provide you with some information about dementia blogs.  You may want to just read some of these to find out more about dementia or you may be interested yourself in joining the debates on these blogs.  We hope you find this useful.

We will be adding these blogs as we find them so please get in touch if you have one you think we should add, email jackie.newey(at)pavo.org.uk.

Alistair Burns Blog.  Alistair is the National Clinical Director for Dementia for England

Dementia Friends Blog.  Dementia Friends aims to make everyday life better for people with dementia by changing the way the nation thinks, talks and acts.

Jean Nowell, the Alzheimer's Society Dementia Support Worker for Brecon gave a presentation at the recent dementia-themed Powys Confidence & Equality Group Meeting.  More information here

Dementia Queen Blog.  Blogging about dementia: issues, insight with a dash of humor on the side.

Hannah Davies' dementia blog in the South Wales Evening Post. Hannah blogs about her experiences as a carer of her mother who has dementia.

 

Powys Mental Health Blog - you can read posts about dementia:

Memory boxes - the Ystradgynlais story - how memory boxes help patients on a ward at Ystradgynlais hospital.

Memory boxes - connecting with the past - a wonderful dementia-friendly scheme run by Brecknock Museum & Art Gallery in Brecon.

Dementia Supportive Communities event - the North - all about the latest developments in North Powys.

Link to presentations on the day: Karen Rodenburg - Alzheimer's Society, Heather Wenban - Powys Teaching Health Board.

Re-Live Theatre @ Dementia Supportive Communities event Nov 2015 - people with dementia inspired discussion around new initiatives in Powys.

Link to presentations on the day: Ageing Well in Wales, Brecon & Dementia Friendly Community, Powys teaching Health Board, Powys County Council, Powys Association of Voluntary Organisations, Harold Proctor, Powys Befrienders, pledges, summing up.

Dementia Awareness Week 2015 - with an update about dementia services in Powys from Powys teaching Health Board, the Alzheimer's Society and Brecon Dementia Friendly Community.

TED and a dementia story - read about one daughter's approach to improving the quality of life for her father who has dementia.

Caring for dementia patients - what's best? - a piece about the Fan Gorau older people's assessment unit in Newtown, Powys.

Dementia - who is blogging about it? - an introduction and links to some of the best dementia blogs out there on the internet.

Dyfed-Powys Police - dementia friendly and neighbourhood friendly - find out how Dyfed-Powys Police have been working to become dementia friendly in Powys.

Dementia Champions - learning more about various dementia initiatives in Powys.

Dementia supportive communities tackling stigma in Powys - sometimes it's the small things that can really change our lives - the launch of the Dementia Friends' initiative in Powys.

Dementia Friendly Brecon videos

The first is about building a dementia friendly community.

This one is about Music & Memories.

Get Help Now

Chief Inspector Rhiannon Ivens of @DyfedPowys updates us about #Powys Partnerships and the force #mentalhealth conf… twitter.com/i/web/status/9…

Thank you to Huw Irranca-Davies @wgmin_csc for visiting Powys Regional Partnership Board today, helping to shape th… twitter.com/i/web/status/9…

...And for those that either enjoyed my talk at #adisorder4everyone - here it is for your reading pleasure! If you… twitter.com/i/web/status/9…

latest news

Elan Links - FREE Five-Day Ecology Course in the Elan Valley, near Rhayader, Powys

23 April 2018

The Elan Links project is currently running in the Elan Valley, near Rhayader, Powys and creates opportunities for people to access bespoke well-being woodland activities, woodland skills training courses, week-long intensive training in sector specific activities, mentoring, work placemen

events

Visit to Abbey-Cwm-Hir Hall, Llandrindod Wells

Thursday 26 April 2018

Ponthafren Association

80's Disco Night

Saturday 28 April 2018

Newtown

Sculpture Workshop 1 with Geraint Edwards

Tuesday 1 May 2018

Mid Powys Mind

Celf-Able Art Group

Wednesday 2 May 2018

Newtown

Smartphone Workshop

Wednesday 2 May 2018

Ponthafren, Newtown

Become a Dementia Friend

Tuesday 8 May 2018

Newtown

Celf-Able Art Group

Wednesday 9 May 2018

Machynlleth

Stress & Anxiety Management Course (3 weeks, Wednesdays)

Wednesday 9 May 2018

Mid Powys Mind

Mental Health Today Wales 2018

Thursday 10 May 2018

Conference in Cardiff

Public Health Network Cymru - Sustainability Showcase 2018

Thursday 10 May 2018

Llandrindod Wells

Coffee Morning

Sunday 13 May 2018

Dementia Friendly Newtown

Celf-Able Art Group

Tuesday 15 May 2018

Llanfair Caereinion

Networking Event - Mental Health Awareness Week

Wednesday 16 May 2018

Llandrindod Wells

Celf-Able Art Group

Thursday 17 May 2018

Guilsfield

Ink Drawing 2 with Sorell Matei

Thursday 17 May 2018

Mid Powys Mind

SafeTALK:Suicide Alertness Course for Everyone

Monday 21 May 2018

Bracken Trust, Llandrindod Wells

Celf-Able Art Group

Wednesday 23 May 2018

Caersws

Managing Depression Course (3 weeks, Mondays)

Monday 4 June 2018

Presteigne

THRIVE Course (5 weeks, Mondays)

Monday 4 June 2018

Mid Powys Mind

Celf-Able Art Group

Wednesday 6 June 2018

Newtown

Community Workers Meetings (Montgomeryshire)

Wednesday 6 June 2018

Credu (formerly Powys Carers)

Celf-Able Art Group

Wednesday 13 June 2018

Machynlleth

Talk by Ted Maidment on the life of Judy Garland

Thursday 14 June 2018

Newtown

Celf-Able Art Group

Tuesday 19 June 2018

Llanfair Caereinion

Sculpture Workshop 2 with Geraint Edwards

Tuesday 19 June 2018

Mid Powys Mind

Celf-Able Art Group

Thursday 21 June 2018

Guilsfield

Stencil Techniques 1 in Painting with Sorell Matei

Thursday 21 June 2018

Mid Powys Mind

Celf-Able Art Group

Wednesday 27 June 2018

Caersws

Mental Health First Aid Course (2 days)

Tuesday 3 July 2018

Presteigne

Celf-Able Art Group

Wednesday 4 July 2018

Newtown

Celf-Able Art Group

Wednesday 11 July 2018

Machynlleth

Stencil Techniques 2 in Painting with Sorell Matei

Thursday 12 July 2018

Mid Powys Mind

Celf-Able Art Group

Tuesday 17 July 2018

Llanfair Caereinion

Sculpture Workshop 3 with Geraint Edwards

Tuesday 17 July 2018

Mid Powys Mind

Celf-Able Art Group

Thursday 19 July 2018

Guilsfield

Celf-Able Art Group

Wednesday 25 July 2018

Caersws
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