People's Stories

On this page we will try and bring you information from real people about their experiences of dementia whether they have been directly effected or someone close to them has.  We hope that you find these links to people's stories and forums useful.

We will be adding information to this page as we find it, so if you have a link to people's stories that you think we should add please let us know, contact jackie.newey(at)pavo.org.uk.

Alzheimer's Society's Your story - is a place for you to share your experiences of living with dementia.

Dementia UK Carers Stories

Talking Point - Alzheimer's Society's online forum

Mental Health Foundation - The reality of living with dementia - three women who have been diagnosed with dementia speak about their experiences and coping strategies.

John's Campaign - for the right to stay with people with dementia in hospital
The effect of a hospital stay can be catastrophic for a person with dementia — as it was for the man whose experience prompted this campaign. John's Campaign calls for the families and carers of people with dementia to have the same rights as the parents of sick children, and be allowed to remain with them in hospital for as many hours of the day and night as is humanly possible.

Dementia Diaries Project is a series of audio diaries. The project has been featured on BBC radio and television, and in national and local newspapers, and more than 3.8 million people have seen it on Twitter (#dementiadiaries).

Dementia Blogs

Here we will try and provide you with some information about dementia blogs.  You may want to just read some of these to find out more about dementia or you may be interested yourself in joining the debates on these blogs.  We hope you find this useful.

We will be adding these blogs as we find them so please get in touch if you have one you think we should add, email jackie.newey(at)pavo.org.uk.

Alistair Burns Blog.  Alistair is the National Clinical Director for Dementia for England

Dementia Friends Blog.  Dementia Friends aims to make everyday life better for people with dementia by changing the way the nation thinks, talks and acts.

Jean Nowell, the Alzheimer's Society Dementia Support Worker for Brecon gave a presentation at the recent dementia-themed Powys Confidence & Equality Group Meeting.  More information here

Dementia Queen Blog.  Blogging about dementia: issues, insight with a dash of humor on the side.

Hannah Davies' dementia blog in the South Wales Evening Post. Hannah blogs about her experiences as a carer of her mother who has dementia.

 

Powys Mental Health Blog - you can read posts about dementia:

Memory boxes - connecting with the past - a wonderful dementia-friendly scheme run by Brecknock Museum & Art Gallery in Brecon.

Dementia Supportive Communities event - the North - all about the latest developments in North Powys.

Link to presentations on the day: Karen Rodenburg - Alzheimer's Society, Heather Wenban - Powys Teaching Health Board.

Re-Live Theatre @ Dementia Supportive Communities event Nov 2015 - people with dementia inspired discussion around new initiatives in Powys.

Link to presentations on the day: Ageing Well in Wales, Brecon & Dementia Friendly Community, Powys teaching Health Board, Powys County Council, Powys Association of Voluntary Organisations, Harold Proctor, Powys Befrienders, pledges, summing up.

Dementia Awareness Week 2015 - with an update about dementia services in Powys from Powys teaching Health Board, the Alzheimer's Society and Brecon Dementia Friendly Community.

TED and a dementia story - read about one daughter's approach to improving the quality of life for her father who has dementia.

Caring for dementia patients - what's best? - a piece about the Fan Gorau older people's assessment unit in Newtown, Powys.

Dementia - who is blogging about it? - an introduction and links to some of the best dementia blogs out there on the internet.

Dyfed-Powys Police - dementia friendly and neighbourhood friendly - find out how Dyfed-Powys Police have been working to become dementia friendly in Powys.

Dementia Champions - learning more about various dementia initiatives in Powys.

Dementia supportive communities tackling stigma in Powys - sometimes it's the small things that can really change our lives - the launch of the Dementia Friends' initiative in Powys.

Dementia Friendly Brecon videos

The first is about building a dementia friendly community.

This one is about Music & Memories.

Get Help Now

The Bird Company - Barriers, a free @celf_able performance Wed 24 Jan 2pm at @OrielDavies. Celf-Able - providing o… twitter.com/i/web/status/9…

Call for applications from mental health service users and carers:Involvement in a Lived Experience Working Group f… twitter.com/i/web/status/9…

Come along to this public meeting in @DPP_NPTBrecon to hear from @DafyddLlywelyn & @PGCCMarkCollins with local offi… twitter.com/i/web/status/9…

latest news

Welsh Government Migrant Support Organisations Mapping Exercise

8 January 2018

The Welsh Government is aware that Brexit is causing some anxiety amongst many migrant communities in Wales. Officials from the Equality Team are drawing up as comprehensive a list as possible of migrant support groups / associations / clubs, so they can better reassure residents about their status,

events

Adult Autism (ASD) Training

Monday 22 January 2018

Newtown

Invest in your Health

Monday 22 January 2018

Taster Session - Building Better Health, Ponthafren

Mental Capacity Act & Best Interest Training

Tuesday 23 January 2018

Newtown

Montgomeryshire Local Committee

Tuesday 23 January 2018

Powys Community Health Council

The Bird Company – ‘Barriers’

Wednesday 24 January 2018

Celf-Able, Newtown

Meal Deal (Iranian Menu)

Wednesday 24 January 2018

Ponthafren, Newtown

Creative Space Programme (workshops)

Thursday 25 January 2018

Celf O Gwmpas, Llandrindod Wells

Emerging Proud - Welsh Premier

Sunday 28 January 2018

Community Film Screening and Discussion Circle - Llandrindod Wells

Sculpture with Geraint Edwards

Tuesday 30 January 2018

Mid Powys Mind

Celf-Able Art Group

Tuesday 30 January 2018

Newtown

Creative Space Programme (workshops)

Thursday 1 February 2018

Celf O Gwmpas, Llandrindod Wells

LGBTQ+ Awareness Talk

Thursday 1 February 2018

Mid Powys Mind

Mental Health Awareness Training

Monday 5 February 2018

Mid Powys Mind

Suicide First-Aid 2018 Conference

Monday 5 February 2018

Cardiff

Stand up for emotional health & wellbeing meeting

Tuesday 6 February 2018

A network for anyone with an interest in mental health, including people who have used mental health services, carers or service providers.

Stand up for emotional health & wellbeing meeting

Tuesday 6 February 2018

A network for anyone with an interest in mental health, including people who have used mental health services, carers or service providers.

Challenging Behaviour in Dementia Training

Tuesday 6 February 2018

Llandrindod Wells

Community Workers Meetings (Montgomeryshire)

Wednesday 7 February 2018

Credu (formerly Powys Carers)

Rethinking Respite - Living with/caring for someone with Dementia

Wednesday 7 February 2018

Meeting with the Older People’s Commissioner for Wales to talk about what you want from respite/short break support - Llandrindod Wells

Creative Space Programme (workshops)

Thursday 8 February 2018

Celf O Gwmpas, Llandrindod Wells

SURE for Mental Health Training (2 days)

Thursday 8 February 2018

Llandrindod Wells

Radnorshire & Brecknock Local Committee

Thursday 8 February 2018

Powys Community Health Council

Clay Workshop with Alex Allpress

Tuesday 13 February 2018

Mid Powys Mind

Creative Space Programme (workshops)

Thursday 15 February 2018

Celf O Gwmpas, Llandrindod Wells

Tai Chi (Mondays)

Monday 19 February 2018

Mid Powys Mind

Anger Management Course (3 weeks, Wednesdays)

Wednesday 21 February 2018

Mid Powys Mind

Working as an Artist in a Care Home (Talk)

Wednesday 21 February 2018

Brecon & District Mind

Mixed Media with Sorell Matei

Thursday 22 February 2018

Mid Powys Mind

Depression Busting Course (2 days)

Monday 26 February 2018

Newtown

Adult Autism (ASD) Training

Tuesday 27 February 2018

Brecon

Executive Committee

Tuesday 27 February 2018

Powys Community Health Council

2018 National Peer-supported Open Dialogue Conference

Wednesday 28 February 2018

London

Disability Awareness Training

Thursday 8 March 2018

Newtown

Dementia Awareness Training

Thursday 8 March 2018

Llandrindod Wells

Full Council Meeting

Tuesday 13 March 2018

Powys Community Health Council

Depression Management Course (3 weeks, Wednesdays)

Wednesday 14 March 2018

Mid Powys Mind

Drug Use Screening Tool (DUST) Training

Wednesday 14 March 2018

Brecon

Deprivation of Liberty Safeguards (DoLS) Awareness Training

Wednesday 21 March 2018

Llandrindod Wells

ACTivate Your Life Classes - Tuesdays (4 weeks)

Tuesday 27 March 2018

Powys Teaching Health Board, Brecon

Building Self Worth Course (3 weeks, Wednesdays)

Wednesday 11 April 2018

Mid Powys Mind

Compassionate Mental Health Conference (2 days)

Wednesday 25 April 2018

Brecon, Powys

Stress & Anxiety Management Course (3 weeks, Wednesdays)

Wednesday 9 May 2018

Mid Powys Mind

Managing Depression Course (3 weeks, Mondays)

Monday 4 June 2018

Presteigne

THRIVE Course (5 weeks, Mondays)

Monday 4 June 2018

Mid Powys Mind

Community Workers Meetings (Montgomeryshire)

Wednesday 6 June 2018

Credu (formerly Powys Carers)

Mental Health First Aid Course (2 days)

Tuesday 3 July 2018

Presteigne
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