Many of us have an interest in mental health for one reason and another. For some this interest comes from personal, lived experience. We may have experienced mental distress ourselves or we may have been close to someone else who has. We may have used or be using mental health services or we may be close to someone else who does. Many of us wish to get involved and share our ideas, skills, knowledge, experience and expertise in the hope that we can make things better.
Here you can find out what opportunities there are for you to use your experience and get your voice heard. If you see an opportunity that interests you but you are not sure about getting involved, feel you need some support or training or have any questions, then please just get in touch with us and we will try and help. If you don't see an opportunity that you are interested in but have an idea about how you might like to be involved then do please get in touch.
You can email owen.griffkin(at)pavo.org.uk or call the team on 01597 822191.
The MARCH mental health network is carrying out telephone interviews to hear more about people’s experiences of social distancing and self-isolation during the Covid-19 pandemic and the impact it might be having on wellbeing and mental health. If you are interested in taking part, information on the interviews can be found here or contact Alex directly.
The Mental Health & Learning Disability services of Powys Teaching Health Board want to hear from their patients and their carers about their experience of accessing mental health and learning disability services during COVID-19. The individual representatives have created a short survey to complete online here.
Wales Council for Voluntary Action has commissioned Professors Carolyn Wallace and Mark Llewellyn of the University of South Wales to help gather insights into the future role of the voluntary sector in achieving well-being for the people of Wales.
The short study will be run entirely online, and should you want to take part, you will be engaged in three separate online activities over the next six weeks. Each activity will last no more than 20-30 minutes and you can start and come back to the activity when you have some free time. For more information contact Sally Rees on 01745 357561 or email: srees(at)wcva.cymru
If you have had experience of perinatal mental illness either as a patient, parent, family member, carer or friend and would like to participate in shaping the Perinatal Mental Health Service in Wales please complete this survey. / Os gwelwch yn dda, llenwch allan yr arolwg.
Measuring the Mountain is a new citizen approach to evaluating the social care services in Wales. It is run by the University of South Wales with funding from Welsh Government. The project is keen to engage with communities across the country, including Mid Wales, using its pioneering approaches to put Welsh people at the heart of the debate on developing the social care sector. More here.
The Powys-based arts charity Celf Able would like to know what you think about inclusive arts provision in North Powys (Montgomeryshire). Survey here.
The survey closed in December 2019 and results are being analysed. There will soon be a new way to feedback to our service user and carer reps but until then please email owen.griffkin(at)pavo.org.uk if you have an issue or feedback you would like the reps to know about.
If you have been affected by mental health and wellbeing the Welsh Ambulance Services Trust would appreciate your help to enable further development of services as part of the Mental Health Improvement Plan. If you would like to take part in a focus group please contact Isobel Jones, Patient Experience and Community Involvement Coordinator on 01792 776252 Ext. 45444 or email: isobel.jones(at)wales.nhs.uk You can also complete a survey here.
Nottingham Trent University and the University of Liverpool are undertaking a study on schizophrenia and are looking for parents of children (over 18) diagnosed with schizophrenia or schizoaffective disorder.
If you are interested in participating, or want more information about the study, then please see their poster attached here for further detail.
Dementia Services Development Centre Wales is seeking people with dementia, and carers of people with dementia, to take part in a research study about digital life story work. The study will explore if using a digital life storybook - a collection of words, pictures, music and text - can help improve the wellbeing of people with dementia and their carers. Find out more here.