Many of us have an interest in mental health for one reason and another. For some this interest comes from personal, lived experience. We may have experienced mental distress ourselves or we may have been close to someone else who has. We may have used or be using mental health services or we may be close to someone else who does. Many of us wish to get involved and share our ideas, skills, knowledge, experience and expertise in the hope that we can make things better.
Here you can find out what opportunities there are for you to use your experience and get your voice heard. If you see an opportunity that interests you but you are not sure about getting involved, feel you need some support or training or have any questions, then please just get in touch with us and we will try and help. If you don't see an opportunity that you are interested in but have an idea about how you might like to be involved then do please get in touch.
You can email owen.griffkin(at)pavo.org.uk or call the team on 01597 822191.
This study from Cardiff University researchers will look at the experiences and support needs of carers in Wales, as well as the impact of Covid-19. The research is an opportunity for carers to have their voice heard by people who plan services and policies that relate to carers in Wales. Survey here.
Ponthafren's hope is to gather a snapshot of the community's feedback on their work as well as what kinds of support people feel are most important to their community's positive mental health and the more responses they get, the better the overall picture they can build. Ponthafren Association website here. Survey here.
SUPER are recruiting new members. SUPER is a group of public members and patients who work with PRIME Centre Wales on research about primary and emergency care. SUPER stands for Service Users for Primary and Emergency care Research. PRIME Centre Wales is a collaboration of researchers from four universities, undertaking internationally relevant research to benefit patient care.
For further information please email : Bridie Evans, b.a.evans(at)swansea.ac.uk
The Suzy Lamplugh Trust would like to hear about the experiences of anyone who has been stalked, particularly if this has had physical and mental health impacts. Short survey here.
Powys County Council is conducting a research study in Powys and is particularly looking for the views of the following people:
- Those who volunteer providing home support in Powys or are thinking about providing home support.
- Care providers or those who are thinking of starting their own business in this area and would like to inform our research.
- Anyone aged 50+ who is looking for someone to help support them with basic tasks or care in their home or thinking about this for the future.
- Voluntary organisations helping older people in their homes.
The council would like to find out what motivates you, what barriers you are experiencing, if any, and if Digital Solutions could help overcome them. The survey should take no more than 5 mintues to complete and is anonymous, unless you choose to share your contact details with them.
Social Care Wales work with people who use care and support services and organisations to lead improvement in social care in Wales. Social care needs to respond to changing demographic, economic and social needs and your views on this are important. More about the draft priorities and a link to an online survey here.
If you're aged 50 or over and live in Wales, then we want to hear about your experiences during the lockdown and how it's impacted on you.
The national mental health charity Hafal asks you to complete this new survey - what needs to change in mental health services in Wales since the Covid-19 pandemic:
This survey is only for d/Deaf and Disabled people. Disabled people are people with sensory, cognitive, neurodevelopmental conditions, learning disabilities or physical impairments, mental health issues and people with long term health conditions. Link to survey.
Other options to complete the survey:
- Send an email to: information(at)shapingourlives.org.uk and a Word version of the survey will be sent for you to complete.
- Call Becki on 07956 424 511 and do the survey over the telephone or by Zoom.
Do you want to make a difference and play a key part in helping make decisions about Health and Social Care Services in Powys? Do you use local (Powys) health or social care services and/or have you/do you care for someone who has needed services? Find out more about how to volunteer as a Citizen rep on this Board.
The MARCH mental health network is carrying out telephone interviews to hear more about people’s experiences of social distancing and self-isolation during the Covid-19 pandemic and the impact it might be having on wellbeing and mental health. If you are interested in taking part, information on the interviews can be found here or contact Alex directly.
The Mental Health & Learning Disability services of Powys Teaching Health Board want to hear from their patients and their carers about their experience of accessing mental health and learning disability services during COVID-19. The individual representatives have created a short survey to complete online here.
If you have had experience of perinatal mental illness either as a patient, parent, family member, carer or friend and would like to participate in shaping the Perinatal Mental Health Service in Wales please complete this survey. / Os gwelwch yn dda, llenwch allan yr arolwg.
Measuring the Mountain is a new citizen approach to evaluating the social care services in Wales. It is run by the University of South Wales with funding from Welsh Government. The project is keen to engage with communities across the country, including Mid Wales, using its pioneering approaches to put Welsh people at the heart of the debate on developing the social care sector. More here.
The Powys-based arts charity Celf Able would like to know what you think about inclusive arts provision in North Powys (Montgomeryshire). Survey here.
The survey closed in December 2019 and results are being analysed. There will soon be a new way to feedback to our service user and carer reps but until then please email owen.griffkin(at)pavo.org.uk if you have an issue or feedback you would like the reps to know about.
If you have been affected by mental health and wellbeing the Welsh Ambulance Services Trust would appreciate your help to enable further development of services as part of the Mental Health Improvement Plan. If you would like to take part in a focus group please contact Isobel Jones, Patient Experience and Community Involvement Coordinator on 01792 776252 Ext. 45444 or email: isobel.jones(at)wales.nhs.uk You can also complete a survey here.
Nottingham Trent University and the University of Liverpool are undertaking a study on schizophrenia and are looking for parents of children (over 18) diagnosed with schizophrenia or schizoaffective disorder.
If you are interested in participating, or want more information about the study, then please see their poster attached here for further detail.
Dementia Services Development Centre Wales is seeking people with dementia, and carers of people with dementia, to take part in a research study about digital life story work. The study will explore if using a digital life storybook - a collection of words, pictures, music and text - can help improve the wellbeing of people with dementia and their carers. Find out more here.