Many of us have an interest in mental health for one reason and another. For some this interest comes from personal, lived experience. We may have experienced mental distress ourselves or we may have been close to someone else who has. We may have used or be using mental health services or we may be close to someone else who does. Many of us wish to get involved and share our ideas, skills, knowledge, experience and expertise in the hope that we can make things better.
Here you can find out what opportunities there are for you to use your experience and get your voice heard. If you see an opportunity that interests you but you are not sure about getting involved, feel you need some support or training or have any questions, then please just get in touch with us and we will try and help. If you don't see an opportunity that you are interested in but have an idea about how you might like to be involved then do please get in touch.
You can email owen.griffkin(at)pavo.org.uk or call the team on 01597 822191.
If you have had experience of perinatal mental illness either as a patient, parent, family member, carer or friend and would like to participate in shaping the Perinatal Mental Health Service in Wales please complete this survey. / Os gwelwch yn dda, llenwch allan yr arolwg.
The Powys Regional Mental Health Planning and Development Partnership is recruiting for a new Mental Health Carer Representative to help shape Mental Health services in Powys at a strategic level. Closing date: 16 August. More here.
The Area Planning Board is looking for people with experience of substance misuse services to join the board and help make decisions to improve these services. Closing date: 15 August. More here.
Public Health Wales wishes to gain insight into the views and understanding of adverse childhood experiences (ACEs) amongst staff in public sector roles within Wales, and also staff in Third Sector roles which are funded by the Public Sector. Survey here.
Measuring the Mountain is a new citizen approach to evaluating the social care services in Wales. It is run by the University of South Wales with funding from Welsh Government. The project is keen to engage with communities across the country, including Mid Wales, using its pioneering approaches to put Welsh people at the heart of the debate on developing the social care sector. More here.
Age Alliance Wales and Age Cymru are currently running an online survey aimed at gathering opinions on the effectiveness of the Social Services and Well-being (Wales) Act from those who work with older people. They are interested in the Act's effect on older people (aged 50+) in a range of areas, including care needs assessments and reviews, social service provision and design, and information & advice services. Survey here.
Powys Community Health Council is the independent watchdog of NHS services within Powys. The CHC encourages and supports people to have a voice in the design and delivery of NHS services. They are often contacted by people
about the support available with transport to and from health care services. If you access non-emergency patient transport please complete their online survey here.
PAVO is working with local charities such as Credu, Age Cymru and Ponthafren to get grass roots information about how Newtown people support and help each other. We know that hundreds of people are helping their family, friends and neighbours every day, and this research wants to find out more. The information gained will be used to influence decisions made about Newtown and could make a case for more support for community groups and organisations. Links to the survey below:
The Powys-based arts charity Celf Able would like to know what you think about inclusive arts provision in North Powys (Montgomeryshire). Survey here.
Powys County Council (PCC) & Powys Teaching Health Board (PTHB) have agreed to create a ‘Children’s Pledge’ specifically looking at how services provided for children and young people should work. This will help us become a more informed Children’s Rights Respecting County and ensure that decisions don’t negatively impact on the youngest members of our society. Survey here.
Cara Williams, a PhD student at Lancaster University is conducting research into disabled people's experience of working for small and medium size organisations (SMEs), and the SME experience of employing disabled people in their workplace.
She is looking to recruit twenty disabled people and twenty small and medium size organisations to take part in interviews.
If you are interested, you can read Cara's blog to know more about this research here https://disabledpeopleworksmes.wordpress.com/, contact her by email c.williams10(at)lancaster.ac.uk, or find her on Twitter @Cara_J_Williams
Have you been affected by suicide? Are you a suicide survivor? The Centre for Mental Health and Safety at the University of Manchester is conducting research on the impact of suicide on people. Researchers are working with the Support after Suicide Partnership, a growing alliance of national organisations offering support to those bereaved or affected by suicide. Online survey here.
The survey closed in December 2019 and results are being analysed. There will soon be a new way to feedback to our service user and carer reps but until then please email owen.griffkin(at)pavo.org.uk if you have an issue or feedback you would like the reps to know about.
If you have been affected by mental health and wellbeing the Welsh Ambulance Services Trust would appreciate your help to enable further development of services as part of the Mental Health Improvement Plan. If you would like to take part in a focus group please contact Isobel Jones, Patient Experience and Community Involvement Coordinator on 01792 776252 Ext. 45444 or email: isobel.jones(at)wales.nhs.uk You can also complete a survey here.
Nottingham Trent University and the University of Liverpool are undertaking a study on schizophrenia and are looking for parents of children (over 18) diagnosed with schizophrenia or schizoaffective disorder.
If you are interested in participating, or want more information about the study, then please see their poster attached here for further detail.
Dementia Services Development Centre Wales is seeking people with dementia, and carers of people with dementia, to take part in a research study about digital life story work. The study will explore if using a digital life storybook - a collection of words, pictures, music and text - can help improve the wellbeing of people with dementia and their carers. Find out more here.
Serch hynny, mae angen i ni wneud mwy. Os ydych yn siaradwr Cymraeg, hoffem glywed eich barn ar ba rai o'n hadnoddau ar-lein y dylem eu cyfieithu nesaf. Cymerwch funud i gwblhau ein harolwg byr.
Have you experience of being detained and/or being voluntarily or involuntarily an in-patient on a mental health ward? PAVO is looking for volunteers to help run Powys Patients' Council. The role requires a committment of visiting Felindre Ward, Bronllys Hospital, once a month and a senior management meeting, every two months, with some other ad hoc activities/meetings. Lunch and transport expenses are paid. More here