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Get involved - scroll down for opportunities

Many of us have an interest in mental health for one reason and another. For some this interest comes from personal, lived experience. We may have experienced mental distress ourselves or we may have been close to someone else who has. We may have used or be using mental health services or we may be close to someone else who does. Many of us wish to get involved and share our ideas, skills, knowledge, experience and expertise in the hope that we can make things better.

Here you can find out what opportunities there are for you to use your experience and get your voice heard. If you see an opportunity that interests you but you are not sure about getting involved, feel you need some support or training or have any questions, then please just get in touch with us and we will try and help. If you don't see an opportunity that you are interested in but have an idea about how you might like to be involved then do please get in touch.

You can email owen.griffkin(at)pavo.org.uk or call the team on  01597 822191.

All the latest participation opportunities below...

How have you been feeling during the pandemic? Mind survey

If you have experienced mental distress (eg: anxiety, insomnia, high levels of stress, mental health problems) either during or before the pandemic, then the mental health charity Mind would like to hear from you via this survey.

Two new service user / carer reps wanted in Powys

The Powys Mental Health Planning and Development Partnership is looking for two new service user/carer representatives to join as board members to help plan and deliver mental health services in Powys - more details here or email owen.griffkin(at)pavo.org.uk

Getting Clever Together! Shrewsbury & Telford Hospital NHS trust engagement

Shrewsbury & Telford NHS Trust, which provides many essential health services to North Powys residents, is launching an online engagement activity - Getting Clever Together! The online conversation opens on Wednesday 21 April for 4 weeks and will be accessible 24 hours a day 7 days a week. "We know we are an important part of the community and we take this responsibility seriously. We believe hospital services improve when we listen carefully to what people tell us and we respond to their needs. We want to give our communities a much bigger say in how we work and we think you will have lots of brilliant ideas to help us shape our future." More here.

Survey on experiences of mental health care in Wales

Healthcare Inspectorate Wales & NHS Wales National Collaborative Commissioning Unit are carrying out a survey to better understand the experiences of individuals accessing mental health care in Wales. This survey will help to improve services and by completing the survey you can help shape the future of services in Wales. Short survey here.

Impact of Covid-19 on people with eating disorders / difficulties

This is a survey to establish how individuals with eating difficulties/disorders have been affected by the Coronavirus Pandemic. This is a survey for those who are residing in the UK and accessing support for any eating difficulties / disorders. Three charities are working in partnership to undertake this survey which should be completed in around 15 minutes. Survey here.

Consultation on the Delivery of Bereavement Care in Wales

The Welsh Government has developed a draft National Framework for the Delivery of Bereavement Care in Wales and is seeking views on how we can respond to those who are facing, or have experienced, a bereavement. Read more about the consultation & how to respond on the Welsh Government website here.
The closing date for responses: 17 May 2021.

Wales Violence Prevention Unit - domestic abuse survey

The Wales Violence Prevention Unit and University of Exeter are investigating the experiences and behaviours of those in Wales who witness, or have concerns about, domestic violence and abuse and its warning signs during COVID-19. Survey here.

Young Minds survey - what support is available for children & young people's mental health

The survey is designed to help the charity Young Minds understand the mental health and wellbeing support that professionals and volunteers working with young people provide, and the resources or training accessed to give this support. Survey here.

The Wales Covid-19 Wellbeing Survey 2 / Arolwg Llesiant COVID-19 Cymru 2

We want to find out how the ongoing coronavirus pandemic has affected the wellbeing of the Welsh population. Please take 10-15 minutes and tell us how you are feeling HERE.

Sut mae coronafeirws wedi effeithio ar eich lles? Cofiwch gymryd 10-15 munud a dweud wrthym sut rydych yn teimlo YMA

Older People's Commissioner - Call for Winter Stories

The Older People's Commissioner for Wales would like to make sure that older people’s voices and experiences are heard and can be used to deliver change and improvements in services. If you are an older person and would like to share your personal story about how you are getting through these difficult winter months then please email: winterstories(at)olderpeoplewales.com

What do you think of Mid & North Powys Mind's services?

Fill out a survey about Mid & North Powys Mind's services, suggest how they can improve, and tell them what your experience with the charity has been like.

Mid & North Powys Mind survey

Mental health & wellbeing survey from The Game Change Project

The Game Change Project in Newtown wants to learn local people's views on what helps them maintain good mental health and well-being so that they can plan the future direction of their work. The surveys are completely anonymous and only take a few minutes (6 questions in all).

Survey for young people

Survey for everyone else

The future of unpaid carers

This study from Cardiff University researchers will look at the experiences and support needs of carers in Wales, as well as the impact of Covid-19. The research is an opportunity for carers to have their voice heard by people who plan services and policies that relate to carers in Wales. Survey here.

Prime Centre Wales research on primary and emergency care

SUPER are recruiting new members. SUPER is a group of public members and patients who work with PRIME Centre Wales on research about primary and emergency care. SUPER stands for Service Users for Primary and Emergency care Research. PRIME Centre Wales is a collaboration of researchers from four universities, undertaking internationally relevant research to benefit patient care.

For further information please email : Bridie Evans, b.a.evans(at)swansea.ac.uk

Aged 50+? Tell Age Cymru your lockdown experiences

If you're aged 50 or over and live in Wales, then we want to hear about your experiences during the lockdown and how it's impacted on you.

Online survey.

Hafal asks - what needs to change in mental health services in Wales?

The national mental health charity Hafal asks you to complete this new survey - what needs to change in mental health services in Wales since the Covid-19 pandemic: 

English: https://surveymonkey.co.uk/r/R7RRSWY

Welsh: https://surveymonkey.co.uk/r/RN7YXV9

Experts by Experience wanted for Powys Regional Partnership Board

Do you want to make a difference and play a key part in helping make decisions about Health and Social Care Services in Powys? Do you use local (Powys) health or social care services and/or have you/do you care for someone who has needed services? Find out more about how to volunteer as a Citizen rep on this Board.

People’s experiences of social distancing and self-isolation wanted

The MARCH mental health network is carrying out telephone interviews to hear more about people’s experiences of social distancing and self-isolation during the Covid-19 pandemic and the impact it might be having on wellbeing and mental health. If you are interested in taking part, information on the interviews can be found here or contact Alex directly.

Perinatal Mental Health Service Database

If you have had experience of perinatal mental illness either as a patient, parent, family member, carer or friend and would like to participate in shaping the Perinatal Mental Health Service in Wales please complete this survey. / Os gwelwch yn dda, llenwch allan yr arolwg.

Schizophrenia research by Nottingham Trent University/University Of Liverpool

Nottingham Trent University and the University of Liverpool are undertaking a study on schizophrenia and are looking for parents of children (over 18) diagnosed with schizophrenia or schizoaffective disorder.

If you are interested in participating, or want more information about the study, then please see their poster attached here for further detail.

Book of You research study

Dementia Services Development Centre Wales is seeking people with dementia, and carers of people with dementia, to take part in a research study about digital life story work. The study will explore if using a digital life storybook - a collection of words, pictures, music and text - can help improve the wellbeing of people with dementia and their carers. Find out more here.


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