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Many of us have an interest in mental health for one reason and another. For some this interest comes from personal, lived experience. We may have experienced mental distress ourselves or we may have been close to someone else who has. We may have used or be using mental health services or we may be close to someone else who does. Many of us wish to get involved and share our ideas, skills, knowledge, experience and expertise in the hope that we can make things better.

Here you can find out what opportunities there are for you to use your experience and get your voice heard. If you see an opportunity that interests you but you are not sure about getting involved, feel you need some support or training or have any questions, then please just get in touch with us and we will try and help. If you don't see an opportunity that you are interested in but have an idea about how you might like to be involved then do please get in touch.

You can email owen.griffkin(at)pavo.org.uk or call the team on  01597 822191.

All the latest participation opportunities below...

Consultation on Reform of the Mental Health Act

An independent review of the Mental Health Act was completed in December 2018, and the UK Government 's White Paper response, with plans of changes to the law, policy and practice, is out to consultation. The closing date for responses: 21 April 2021.

Read more about the Mental Health Act Review on the Mind website here.
Read more about the consultation & how to respond on the UK Government website here.

Wales Violence Prevention Unit - domestic abuse survey

The Wales Violence Prevention Unit and University of Exeter are investigating the experiences and behaviours of those in Wales who witness, or have concerns about, domestic violence and abuse and its warning signs during COVID-19. Survey here.

Consultation on the ‘Substance Misuse Treatment Framework on Alcohol-Related Brain Damage’

The Welsh Government is seeking your views on the draft framework, which looks at ways of preventing ARBD and treatment for those affected by the condition. The framework will assist health and social care planners and providers to design and provide quality services for ARBD. Closing date: 25 March 2021. More here.

Young Minds survey - what support is available for children & young people's mental health

The survey is designed to help the charity Young Minds understand the mental health and wellbeing support that professionals and volunteers working with young people provide, and the resources or training accessed to give this support. Survey here.

The Wales Covid-19 Wellbeing Survey 2 / Arolwg Llesiant COVID-19 Cymru 2

We want to find out how the ongoing coronavirus pandemic has affected the wellbeing of the Welsh population. Please take 10-15 minutes and tell us how you are feeling HERE.

Sut mae coronafeirws wedi effeithio ar eich lles? Cofiwch gymryd 10-15 munud a dweud wrthym sut rydych yn teimlo YMA

Older People's Commissioner - Call for Winter Stories

The Older People's Commissioner for Wales would like to make sure that older people’s voices and experiences are heard and can be used to deliver change and improvements in services. If you are an older person and would like to share your personal story about how you are getting through these difficult winter months then please email: winterstories(at)olderpeoplewales.com

What do you think of Mid & North Powys Mind's services?

Fill out a survey about Mid & North Powys Mind's services, suggest how they can improve, and tell them what your experience with the charity has been like.

Mid & North Powys Mind survey

Mental health & wellbeing survey from The Game Change Project

The Game Change Project in Newtown wants to learn local people's views on what helps them maintain good mental health and well-being so that they can plan the future direction of their work. The surveys are completely anonymous and only take a few minutes (6 questions in all).

Survey for young people

Survey for everyone else

The future of unpaid carers

This study from Cardiff University researchers will look at the experiences and support needs of carers in Wales, as well as the impact of Covid-19. The research is an opportunity for carers to have their voice heard by people who plan services and policies that relate to carers in Wales. Survey here.

Ponthafren Association Annual Survey

Ponthafren's hope is to gather a snapshot of the community's feedback on their work as well as what kinds of support people feel are most important to their community's positive mental health and the more responses they get, the better the overall picture they can build. Ponthafren Association website here. Survey here.

Prime Centre Wales research on primary and emergency care

SUPER are recruiting new members. SUPER is a group of public members and patients who work with PRIME Centre Wales on research about primary and emergency care. SUPER stands for Service Users for Primary and Emergency care Research. PRIME Centre Wales is a collaboration of researchers from four universities, undertaking internationally relevant research to benefit patient care.

For further information please email : Bridie Evans, b.a.evans(at)swansea.ac.uk

Have you been a victim of stalking?

The Suzy Lamplugh Trust would like to hear about the experiences of anyone who has been stalked, particularly if this has had physical and mental health impacts. Short survey here.

Digitial Research Questionnaire 2020 - Powys

Powys County Council is conducting a research study in Powys and is particularly looking for the views of the following people:

  • Those who volunteer providing home support in Powys or are thinking about providing home support.
  • Care providers or those who are thinking of starting their own business in this area and would like to inform our research.
  • Anyone aged 50+ who is looking for someone to help support them with basic tasks or care in their home or thinking about this for the future.
  • Voluntary organisations helping older people in their homes.

The council would like to find out what motivates you, what barriers you are experiencing, if any, and if Digital Solutions could help overcome them. The survey should take no more than 5 mintues to complete and is anonymous, unless you choose to share your contact details with them.

Take the Digital Research survey
Take the Digital Research survey (organisations)

What are the priorities for social care in Wales for the next 5 years?

Social Care Wales work with people who use care and support services and organisations to lead improvement in social care in Wales. Social care needs to respond to changing demographic, economic and social needs and your views on this are important. More about the draft priorities and a link to an online survey here.

Aged 50+? Tell Age Cymru your lockdown experiences

If you're aged 50 or over and live in Wales, then we want to hear about your experiences during the lockdown and how it's impacted on you.

Online survey.

Hafal asks - what needs to change in mental health services in Wales?

The national mental health charity Hafal asks you to complete this new survey - what needs to change in mental health services in Wales since the Covid-19 pandemic: 

English: https://surveymonkey.co.uk/r/R7RRSWY

Welsh: https://surveymonkey.co.uk/r/RN7YXV9

Shaping our Lives survey about using technology during the Covid-19 pandemic

This survey is only for d/Deaf and Disabled people. Disabled people are people with sensory, cognitive, neurodevelopmental conditions, learning disabilities or physical impairments, mental health issues and people with long term health conditions. Link to survey.

Other options to complete the survey:

  1. Send an email to: information(at)shapingourlives.org.uk and a Word version of the survey will be sent for you to complete.
  2. Call Becki on 07956 424 511 and do the survey over the telephone or by Zoom.

Experts by Experience wanted for Powys Regional Partnership Board

Do you want to make a difference and play a key part in helping make decisions about Health and Social Care Services in Powys? Do you use local (Powys) health or social care services and/or have you/do you care for someone who has needed services? Find out more about how to volunteer as a Citizen rep on this Board.

People’s experiences of social distancing and self-isolation wanted

The MARCH mental health network is carrying out telephone interviews to hear more about people’s experiences of social distancing and self-isolation during the Covid-19 pandemic and the impact it might be having on wellbeing and mental health. If you are interested in taking part, information on the interviews can be found here or contact Alex directly.

NHS Mental Health & Learning Disability Services during COVID-19

The Mental Health & Learning Disability services of Powys Teaching Health Board want to hear from their patients and their carers about their experience of accessing mental health and learning disability services during COVID-19. The individual representatives have created a short survey to complete online here.

Perinatal Mental Health Service Database

If you have had experience of perinatal mental illness either as a patient, parent, family member, carer or friend and would like to participate in shaping the Perinatal Mental Health Service in Wales please complete this survey. / Os gwelwch yn dda, llenwch allan yr arolwg.

Mental Health Services in Powys survey

The survey closed in December 2019 and results are being analysed. There will soon be a new way to feedback to our service user and carer reps but until then please email owen.griffkin(at)pavo.org.uk if you have an issue or feedback you would like the reps to know about. 

Have your say for Welsh Ambulance Services Trust Mental Health Improvement Plan

If you have been affected by mental health and wellbeing the Welsh Ambulance Services Trust would appreciate your help to enable further development of services as part of the Mental Health Improvement Plan. If you would like to take part in a focus group please contact Isobel Jones, Patient Experience and Community Involvement Coordinator on 01792 776252 Ext. 45444 or email: isobel.jones(at)wales.nhs.uk You can also complete a survey here.

Schizophrenia research by Nottingham Trent University/University Of Liverpool

Nottingham Trent University and the University of Liverpool are undertaking a study on schizophrenia and are looking for parents of children (over 18) diagnosed with schizophrenia or schizoaffective disorder.

If you are interested in participating, or want more information about the study, then please see their poster attached here for further detail.

Book of You research study

Dementia Services Development Centre Wales is seeking people with dementia, and carers of people with dementia, to take part in a research study about digital life story work. The study will explore if using a digital life storybook - a collection of words, pictures, music and text - can help improve the wellbeing of people with dementia and their carers. Find out more here.


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