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Many of us have an interest in mental health for one reason and another. For some this interest comes from personal, lived experience. We may have experienced mental distress ourselves or we may have been close to someone else who has. We may have used or be using mental health services or we may be close to someone else who does. Many of us wish to get involved and share our ideas, skills, knowledge, experience and expertise in the hope that we can make things better.

Here you can find out what opportunities there are for you to use your experience and get your voice heard. If you see an opportunity that interests you but you are not sure about getting involved, feel you need some support or training or have any questions, then please just get in touch with us and we will try and help. If you don't see an opportunity that you are interested in but have an idea about how you might like to be involved then do please get in touch.

You can email owen.griffkin(at)pavo.org.uk or call the team on  01597 822191.

All the latest participation opportunities below...

Holiadur cefnogaeth iechyd meddwl i bobl ifanc / Young people mental health support survey

Mae Rhun ap Iorwerth, Aelod o’r Senedd, wedi lansio arolwg dwyieithog yn gofyn i bobl ifanc yng Nghymru rannu eu profiad o ddefnyddio gwasanaethau iechyd meddwl. Arolwg YMA.

Rhun ap Iorwerth, Member of the Senedd, has launched a bilingual survey asking young people in Wales to share their experience of accessing mental health services. Survey HERE.

Wellbeing in Powys

Powys County Council has to carry out a Wellbeing Assessment as part of the Future Generations (Wales) Act. What does wellbeing mean to you in relation to the four key areas of: Social, Economy, Environment, Culture & Community? Have your say HERE - the survey is open until 17 December 2021.

Powys Community Health Council want to hear from you

Powys Community Health Council (CHC) would like your opinions and ideas on what you think we SHOULD be doing in order to best represent the residents of Powys with regards to their National Health Service.

To access the short survey in English please click here

To access the short survey in Welsh please click here

Alternatively, if you would like a hard copy of this document please contact: Flora Buckle – Monitoring & Scrutiny Officer, by emailing flora.buckle(at)wales.nhs.uk

Closing date 9th January 2022.

North Powys Wellbeing Survey

An online survey has been launched by the North Powys Wellbeing Programme, asking for feedback on early ideas to bring together health and social care, library services, supported housing, shared community space and a health and care academy alongside the planned new school building for Ysgol Calon y Dderwen in the centre of town.

The programme is being led by Powys Teaching Health Board and Powys County Council under the banner of the Powys Regional Partnership Board with the support of the Powys Association of Voluntary Organisations.

The online survey can be found here and will run until midnight on December 12th.

Paper copies of the survey will shortly be available from council libraries in the north of Powys or by contacting powyswellbeing.north(at)wales.nhs.uk or by ringing 07792 129677.

This survey will not be the last opportunity for people to have their say. Further engagement will be carried out as the programme develops in the coming years.

Wales Mental Health & Wellbeing Forum - Formal Consultation - Guidance on Best Practice in Service User and Carer Engagement

The Wales Mental Health & Wellbeing Forum have been commissioned by Welsh Government to develop National Guidance and lay out recommendations for best practice in co-production. We are pleased to confirm that the Guidance document is now open for formal consultation, which will run until the 31st January 2022. More info here.

Samaritans Policy, Partnerships and Research Committee Lived Experience Member required

The Samaritans are looking for someone with lived experience of suicide, self-harm, or of using their services to join their Policy, Partnerships and Research Committee (PPRC). PPRC is a sub-committee of the Samaritans Board, which helps to ensure that their public policy positions are right for their organisation, that they have a high-quality programme of research, and that their national partnerships are strategically focused. More here.

UK Bereavement Commission: Call for Evidence

The UK Bereavement Commission is looking for experiences of grief to help improve the bereavement support available to people across the country.

The survey is open to those over 18 who've been bereaved in the last 5 years, including to those who’ve been bereaved as a result of, or during the Covid-19 pandemic.

We really want people from Wales to take part to ensure all areas of the UK are being represented. If you feel able to share your story and take part, you can respond in English or in Welsh following this link: https://bereavementcommission.org.uk/taking-part/

Research into stays in psychiatric hospital

Have you been admitted to an adult Psychiatric Hospital in the last 5 years? Do you want to share your experiences and have your voice heard? Georgina Rose is conducting research into people's experiences of staying in a psychiatric ward. More here.

The Shrewsbury & Telford Hospital community events

The Shrewsbury & Telford Hospital (SaTH) provides many health services for residents in North Powys. If you would like to find out more about the trust's services, and perhap give feedback about services you have received, you can do so at a number of upcoming online events, including the monthly Community Cascade delivered by a senior manager, and the Community Drop-ins hosted by the Community Engagement team. Find out more and book your place here.

Welsh Ambulance Service's new People & Community Network

Members of the Welsh Ambulance Service’s People and Community Network can attend meetings, take surveys and share their own experience at the hands of the ambulance service in order to shape the way services are delivered. More here.

Helping End Homelessness in Powys survey

Since March 2020, almost 1000 people have registered as homeless in Powys. Have your say and help shape initiatives to prevent homelessness in Powys in the future. Survey here.

Representatives required for The Partnership Forum for Older People - Powys | Chwilio am gynrychiolwyr ar Y Fforwm Bartneriaeth ar gyfer Pobl Hŷn - Powys

The Partnership Forum for Older People in Powys is currently recruiting up to 5 older people / service user representatives to join the Forum to contribute to all issues affecting older people such as housing, transport, leisure, health and community issues. More here.

Mae’r Fforwm Bartneriaeth ar gyfer Pobl Hŷn ym Mhowys am recriwtio hyd at 5 o bobl hŷn/cynrychiolwyr defnyddwyr y gwasanaeth i ymuno â’r Fforwm i gyfrannu at bynciau sy’n effeithio ar bobl hŷn megis tai, trafnidiaeth, hamdden, iechyd a chymuned. Mwy yma.

Two new service user / carer reps wanted in Powys

The Powys Mental Health Planning and Development Partnership is looking for two new service user/carer representatives to join as board members to help plan and deliver mental health services in Powys - more details here or email owen.griffkin(at)pavo.org.uk

Impact of Covid-19 on people with eating disorders / difficulties

This is a survey to establish how individuals with eating difficulties/disorders have been affected by the Coronavirus Pandemic. This is a survey for those who are residing in the UK and accessing support for any eating difficulties / disorders. Three charities are working in partnership to undertake this survey which should be completed in around 15 minutes. Survey here.

Wales Violence Prevention Unit - domestic abuse survey

The Wales Violence Prevention Unit and University of Exeter are investigating the experiences and behaviours of those in Wales who witness, or have concerns about, domestic violence and abuse and its warning signs during COVID-19. Survey here.

What do you think of Mid & North Powys Mind's services?

Fill out a survey about Mid & North Powys Mind's services, suggest how they can improve, and tell them what your experience with the charity has been like.

Mid & North Powys Mind survey

Mental health & wellbeing survey from The Game Change Project

The Game Change Project in Newtown wants to learn local people's views on what helps them maintain good mental health and well-being so that they can plan the future direction of their work. The surveys are completely anonymous and only take a few minutes (6 questions in all).

Survey for young people

Survey for everyone else

The future of unpaid carers

This study from Cardiff University researchers will look at the experiences and support needs of carers in Wales, as well as the impact of Covid-19. The research is an opportunity for carers to have their voice heard by people who plan services and policies that relate to carers in Wales. Survey here.

Prime Centre Wales research on primary and emergency care

SUPER are recruiting new members. SUPER is a group of public members and patients who work with PRIME Centre Wales on research about primary and emergency care. SUPER stands for Service Users for Primary and Emergency care Research. PRIME Centre Wales is a collaboration of researchers from four universities, undertaking internationally relevant research to benefit patient care.

For further information please email : Bridie Evans, b.a.evans(at)swansea.ac.uk

Hafal asks - what needs to change in mental health services in Wales?

The national mental health charity Hafal asks you to complete this new survey - what needs to change in mental health services in Wales since the Covid-19 pandemic: 

English: https://surveymonkey.co.uk/r/R7RRSWY

Welsh: https://surveymonkey.co.uk/r/RN7YXV9

Experts by Experience wanted for Powys Regional Partnership Board

Do you want to make a difference and play a key part in helping make decisions about Health and Social Care Services in Powys? Do you use local (Powys) health or social care services and/or have you/do you care for someone who has needed services? Find out more about how to volunteer as a Citizen rep on this Board.

Perinatal Mental Health Service Database

If you have had experience of perinatal mental illness either as a patient, parent, family member, carer or friend and would like to participate in shaping the Perinatal Mental Health Service in Wales please complete this survey. / Os gwelwch yn dda, llenwch allan yr arolwg.


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