People's Stories

On this page we will try and bring you information from real people about their experiences of dementia whether they have been directly effected or someone close to them has. We hope that you find these links to people's stories and forums useful.

We will be adding information to this page as we find it, so if you have a link to people's stories that you think we should add please let us know, contact mentalhealth(at)pavo.org.uk

Alzheimer's Society's Your story - is a place for you to share your experiences of living with dementia.

Dementia UK Carers Stories

Talking Point - Alzheimer's Society's online forum

Mental Health Foundation - The reality of living with dementia - three women who have been diagnosed with dementia speak about their experiences and coping strategies.

John's Campaign - for the right to stay with people with dementia in hospital
The effect of a hospital stay can be catastrophic for a person with dementia - as it was for the man whose experience prompted this campaign. John's Campaign calls for the families and carers of people with dementia to have the same rights as the parents of sick children, and be allowed to remain with them in hospital for as many hours of the day and night as is humanly possible.

Dementia Diaries Project is a series of audio diaries. The project has been featured on BBC radio and television, and in national and local newspapers.

Dementia Blogs

Here we will try and provide you with some information about dementia blogs. You may want to just read some of these to find out more about dementia or you may be interested yourself in joining the debates on these blogs. We hope you find this useful.

We will be adding these blogs as we find them so please get in touch if you have one you think we should add, email mentalhealth(at)pavo.org.uk

Alistair Burns Blog. Alistair is Professor of Old Age Psychiatry at The University of Manchester.

Alzheimer's Research UK - a blog where research staff address subjects in their area of expertise.

Dementia Friends Blog. Dementia Friends aims to make everyday life better for people with dementia by changing the way the nation thinks, talks and acts.

Improving Dementia Awareness & Education - blogs from dementia experts around the UK curated by Nottingham University.

Memory for Two - a blog about Young Onset Dementia.

Powys Mental Health Blog - you can read posts about dementia:

Powys Dementia Network - a dementia diagnosis 

Powys Dementia Network - first online event!

Powys Dementia Network - starting off the new decade

Powys Dementia Network - summer 2019

Memory boxes - the Ystradgynlais story - how memory boxes help patients on a ward at Ystradgynlais hospital.

Memory boxes - connecting with the past - a wonderful dementia-friendly scheme run by Brecknock Museum & Art Gallery in Brecon.

Dementia Supportive Communities event - the North - all about the latest developments in North Powys.

Link to presentations on the day: Karen Rodenburg - Alzheimer's Society,Heather Wenban - Powys Teaching Health Board.

Re-Live Theatre @ Dementia Supportive Communities event Nov 2015 - people with dementia inspired discussion around new initiatives in Powys.

Link to presentations on the day: Ageing Well in Wales, Brecon & Dementia Friendly Community,Powys teaching Health Board, Powys County Council, Powys Association of Voluntary Organisations, Harold Proctor, Powys Befrienders, pledges, summing up

Dementia Friendly Brecon videos

The first is about building a dementia friendly community.

This one is about Music & Memories.

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