Many of us have an interest in mental health for one reason and another. For some this interest comes from personal, lived experience. We may have experienced mental distress ourselves or we may have been close to someone else who has. We may have used or be using mental health services or we may be close to someone else who does. Many of us wish to get involved and share our ideas, skills, knowledge, experience and expertise in the hope that we can make things better.

Here you can find out what opportunities there are for you to use your experience and get your voice heard. If you see an opportunity that interests you but you are not sure about getting involved, feel you need some support or training or have any questions, then please just get in touch with us and we will try and help. If you don’t see an opportunity that you are interested in but have an idea about how you might like to be involved then do please get in touch.

You can email or call the team on 01597 822191.

ECT survey - have you, or someone you know, had electroconvulsive therapy

The purpose of this University of East London survey is to understand people’s experience of Electroconvulsive Therapy (ECT), and enhance the information given to people being offered ECT and their families. This is your opportunity to share your experiences of this treatment, positive, negative, mixed and neutral.

The survey needs more Welsh people to share their experiences.

Find out more and complete the survey HERE.


Tell the Centre for Mental Health about any barriers you have in voting

If you have experience of a mental health problem, the Centre for Mental Health want to hear from you about voting. Have you registered to vote? Or is it too difficult to? They would like to hear about your experiences. 

At the Centre for Mental health they are undertaking research into the barriers that people with mental health problems face in registering to vote. There will be local elections in May and a general election in the near future, so it is a good time to deepen our understanding of how we can support people to take part. 

They are conducting this research on behalf of the Electoral Commission, the independent body which oversees elections in the UK. As part of its role, the Commission works to promote public confidence in the democratic process. This work is informed by research into public attitudes towards registering to vote and voting, particularly among groups who may face additional barriers that prevent them from taking part in our democracy.  

Similar research projects are ongoing to understand the barriers faced by Deaf people (working with the RNID), people with a learning disability (working with Mencap) and people who are eligible to vote anonymously, particularly domestic violence survivors (working with Women’s Aid). 

Your responses will help the Electoral Commission, Centre for Mental Health and other organisations to support people with mental health problems to exercise their democratic rights. 


There are two ways to get involved in this research.  

  • Complete a questionnaireThis should take you only three minutes to fill out. It will help Centre for Mental Health better understand the barriers to voter registration for people with mental health problems. There will be a prize draw for a high street voucher for £100.  
  • Sign up to one of their online focus groups: There will be about eight people in each discussion – which will last about 45 minutes – and you, and other people with mental health problems, will be asked to share your experiences about the process of registering to vote. Each participant will receive a £20 high street voucher for their time. 
Welsh Government Draft Mental Health and Wellbeing & Suicide and Self-Harm Prevention Strategies (2024-2034)

We would like to invite you to help shape our future strategies for mental health and wellbeing, and suicide and self-harm prevention in Wales. It has been 10 years since our previous strategies were published and we have now published the new Welsh Government Mental Health and Wellbeing, and Suicide and Self Harm Prevention Strategies for Wales for a 16 week public consultation. The consultation will close on 11 June 2024.

Mental health and wellbeing strategy

Cymraeg –

English –

Suicide and self-harm prevention strategy

Cymraeg –

English –

There are resources available to support you to have group discussions about the strategies. These engagement packs will provide information for you to talk with others to support them to develop their own responses to the consultations. There are adult and young person resources available.

Please contact the Mental Health and Vulnerable Groups Mailbox to request engagement packs for the strategies.

If you work with children and young people and you would like an engagement pack or support to run a session on the new strategies, please contact

It is important to us that feedback reflects the diversity of our population so please feel free to share this link with others.

Help and support for your own mental health.

If you need support with your mental health, you can ring the CALL Helpline: 0800 132 737.  Or for urgent support please call the NHS on 111 and press 2.

Welsh Ambulance Service Patient Experience Survey

Please complete this survey if you have an experience of calling 999 in an emergency situation. This could have been for yourself or for a friend or family member. Your feedback is important to us and will help us to learn and improve.

You can use this survey to tell us about your telephone call to 999, how we responded and about any call backs you may have received from our Clinical Advisors.

We do not need to know your personal details and advise you not to provide personal details that could identify you, but have asked some general questions at the end about who you are. This is so that we can make sure we are asking all groups of people about their experience. Any responses will be kept confidential and only anonymous survey results will shared or disclosed.

Please see the privacy notice for more information.

If you would like to discuss this survey or ask any questions about it please contact the Patient Experience & Community Involvement team on 0300 123 9207 or email 


Powys Regional Partnership Board Carer Member Recruitment

Powys’ Regional Partnership Board are looking for carers in Powys who have an interest in health and wellbeing to become part of the Board and to help to shape services.

Are you a passionate unpaid carer?

Do you want to make a difference and play a key part in helping make decisions about Health and Social Care Services in Powys?

Do you use local (Powys) health or social care services and/or have you/do you care for someone who has needed services?

If so this might be the opportunity for you.

Please follow the link here for more information.

Veterans gambling addiction research study - volunteers wanted

The veterans’ charity Change Step are working alongside Swansea University on a 3 year study investigating gambling addiction and the harms produced from that addiction.  They are currently recruiting veterans for a voluntary study.

It does not have to be a full blown “addiction,” anyone who bets, or has done in the past, would be eligible, they are happy to meet up with veterans and explain the project.

All details of individuals who wish to take part will be anonymous, and those who take part can, if they so wish, pull out at any time in line with the British Psychological Society code of ethics.

Contact details for the project

Survey of Older People's Experiences of General Practices

Older people’s access to GP services is a longstanding issue.    The Older People’s Commissioner for Wales produced a report, GP Services in Wales: The Perspective of Older People, intended to improve access, in 2018. 

For many older people the Covid-19 pandemic made access more difficult, especially for those living with dementia and those who were isolated with no-one nearby who could help them.  The shift to online and telephone-based services was accelerated by the pandemic.  This has been helpful for some older people, but has created barriers for others, especially those who are not online.   For example, a number of older people have told the Commissioner they have been unable to take part in online / video call appointments with their GP and have been unable to book a face-to-face appointment.

Reported NHS pressures are also having an impact on people’s access to health services.  This is something that many of the older people whom the Commissioner and her team have met and spoken with throughout Wales have experienced while trying to access the NHS. 

The Commissioner is keen to know what your experiences of accessing GP practices have been like in the last few months and whether you have found any issues.  If you are aged 60 or over, this survey is for you.  If someone under 60 is filling in the survey form for you, they will need to include your information, not theirs.

If you would like to tell us in more detail about any of your experiences, please use the text box at the end of the survey.

All of the answers you provide will be anonymised so you will not be personally identifiable by the information you provide.

You can share your experiences here – it will only take a couple of minutes – or, if you’d prefer, you can call us on 03442 640 670, email or write to us:

Older People’s Commissioner for Wales
Cambrian Buildings
Mount Stuart Square
CF10 5FL

Many thanks for your help!

If you need assistance with any of the issues you have experienced, please remember you can contact the Commissioner’s Advice and Assistance team on 03442 640 670 or email for help and support.

Do you want to help develop Perinatal Mental Health Services in Powys?
Opportunity: Individual Carer Representative on Mental Health Regional Planning and Development Partnership

The Powys Mental Health Planning and Development Partnership is recruiting for a new Mental Health Carer Representative to help shape Mental Health services in Powys at a strategic level.  The partnership is responsible for overseeing how the Welsh Government’s Together for Mental Health strategy is delivered in Powys and consists of all organisations involved in this delivery. ( E.g. Powys County Council, Powys Teaching Health Board, Dyfed-Powys Police). As an equal member of the partnership board you will help ensure that service users and carers have their voice heard in the decision making process around mental health provision in the county .

There are 4 partnership meetings each year, and there are other opportunities to take part in further sub-groups looking at specific areas of services. You would also gather views and experiences of other carers and service users at meetings so that you are actively representing the views of people from around Powys. This would be supported and facilitated by PAVO.

If you would like to apply please contact PAVO Mental Health Team at

Time to Talk Public Health Conversation

Have your say and help shape public health policy for Wales!

Time to Talk Public Health is Public Health Wales’ nationally representative panel of 2,500 residents across Wales. By sharing their experiences and views each month, panel members will help to shape public health policy and decision making, and contribute to improving health and well-being across Wales.

Panel members wanted

Public Health Wales is looking for residents of Wales aged 16+ to join the Panel!

To ensure the information collected by the Panel reflects the population of Wales, they need a diverse range of residents from all regions of Wales to take part.

Find out more on the Time to Talk Public Health website.

Llais - we want to hear from you

New study exploring Black African clients' experiences of CBT

Rusha Mohamed is a Master’s student at the University of Hertfordshire and an accredited Cognitive Behavioural Therapist.

Rusha is currently conducting a piece of research exploring Black African clients’ experiences of Cognitive Behavioural Therapy (CBT). The aim of the study is to gain a better understanding of why they are dropping out of CBT treatment earlier than planned at a higher rate than people of other ethnic backgrounds. This will hopefully provide us with further insight into how to improve our services for this demographic.

Rusha is hoping to recruit participants (who meet the inclusion criteria) to interview in this study. Please contact her to discuss any of this further and to answer any questions.

Telephone: 07502 277 613
Twitter: RushaMohamed121

More HERE.

Shrewsbury & Telford NHS Hospitals Transformation Programme

Shrewsbury & Telford Hospitals NHS Trust is improving the way it delivers hospital care across Shropshire, Telford and Wrekin and Mid Wales and want to hear from you.

There are 4 focus groups, into which the Trust would like your input:

  1. Urgent & Emergency Care and medicine Focus Group – 7 quarterly meetings between 25th May 2023 and 30th January 2025.
  2. Clinical Support Services Focus Group – 4 – Six monthly meetings between September 2023 and March 2025.
  3. Women’s & Children’s Focus Group – 8 quarterly meetings between June 2023 and March 2025.
  4. Planned Care Focus Group – 9 quarterly meetings – March 2023 to March 2025.

The Trust can also provide a speaker to discuss the Hospitals Transformation should your group or organisation wish to avail
themselves of this offer.

For further information please contact the Engagement Officer, Michael by emailing

There is also information on the Trust website HERE.

Self-harm in rural Wales: a research study
Do you have experience of self-harm and live in Powys? The Powys Mental Health Services, PTHB team has launched a research survey on self-harm in rural Wales. This survey will help the team develop better services for Powys residents. All answers are anonymous.
The study has ethical approval from Bwrdd Iechyd Addysgu Powys / Powys Teaching Health Board and Bangor University.
Older People's Forum seeks individual representatives

Powys Older Peoples Forum

The Powys Older Peoples Forum are in the process of a recruitment drive to gain older people representatives from all over Powys to gain the views on Health and wellbeing services offered in Powys aimed and used primarily by people aged 60+

What is the Older People Forum?

The Older People’s Forum is a Forum made of older people throughout Powys to enable citizens aged 60+ to contribute ideas and opinions with regards to matters affecting them and their lives. These will influence decisions about how Adult Care Services in Powys County Council and Powys Teaching Health Board spend the money available and on what services, for the benefit of older people.

The main aims of the forum are:

  • To help to ensure that the services provided meet older people’s needs.
  • To hold Powys County Council (PCC), Powys teaching Health Board (PtHB) and third sector organisations commissioned to provide services for older people to account and give feedback about their services.
  • To feed back issues affecting older people in their communities.
  • To undertake consultations on behalf of older people in Powys conducted by PCC, PtHB, the third sector and Welsh Government.
  • To advise the Age Well Partnership Board on services that are being developed or provided.
  • Providing older citizens, a chance to influence policy, service design and delivery of services.

Who sits on the Older People Forum?

The forum is made up of older citizens of Powys (60+) from the 13 locality areas

The 13 localities are:

  • Llanfyllin & Tanat Valley
  • Brecon
  • Welshpool & Montgomery
  • Newtown
  • Llanfair Caereinion
  • Builth & Llanwrtyd Wells
  • Llanidloes
  • Crickhowell
  • Llandrindod Wells & Rhayader
  • Machynlleth & Bro Dyfi
  • Hay on Wye & Talgarth
  • Knighton & Presteigne
  • Ystradgynlais

From these members we aim to include people with an interest and/or experience of:

  • Unpaid carers
  • Mental health issues
  • Long term health issues
  • Older people in work
  • Care home or sheltered housing resident
  • Older people living with dementia
  • Transport issues
  • Sports and leisure activities
  • Physical disability
  • Sensory loss
  • Rural living
  • Welsh Language

What is the commitment?

  • The Forum hold a minimum of 4 meetings per year.
  • There may be sub groups that members would like to be involved in.
  • One member would also be appointed by the forum to sit on the Age Well Board.

Membership term

  • Members are expected to sit on the Forum for a 3 year period.
  • This is to give a greater understanding of the issues and give a meaningful experience.
  • Extra dispensation is given if elected chair or vice chair so as to carry out their term of office.

What support will be offered?

The Older People’s Forum will have a dedicated support officer whose role it will be to:

  • Enable members to attend meetings.
  • Ensure all materials are accessible in a timely manner and in a format that can be accessed by individual members.
  • Support in accessing the correct areas of PtHB, PCC and the third sector to offer additional information and support for community issues.
  • Gain feedback on the Forum as a whole and how it can be improved.
  • Carry out induction training for all members.
  • Process any expenses claims that are occurred.

In your area

We are holding meetings in each of the 13 locality areas over the next few months working collaboratively with Age Cymru Powys.

These meetings will be an opportunity for residents to share their experiences of services provided aimed at people 60+ in their local areas and how things can these services can be improved.

These dates and venues will be announced as soon as possible.

If I would like to become a member who do I contact?

Andrew Davies
Health & Well Being Participation Officer / PAVO
Ffôn / Tel: 01597 822191
Ebost / email:

Or click the link –




Samaritans Policy, Partnerships and Research Committee Lived Experience Member required

The Samaritans are looking for someone with lived experience of suicide, self-harm, or of using their services to join their Policy, Partnerships and Research Committee (PPRC). PPRC is a sub-committee of the Samaritans Board, which helps to ensure that their public policy positions are right for their organisation, that they have a high-quality programme of research, and that their national partnerships are strategically focused. More here.

Hafal asks - what needs to change in mental health services in Wales?

The national mental health charity Hafal asks you to complete this new survey – what needs to change in mental health services in Wales since the Covid-19 pandemic: