Many of us have an interest in mental health for one reason and another. For some this interest comes from personal, lived experience. We may have experienced mental distress ourselves or we may have been close to someone else who has. We may have used or be using mental health services or we may be close to someone else who does. Many of us wish to get involved and share our ideas, skills, knowledge, experience and expertise in the hope that we can make things better.
Here you can find out what opportunities there are for you to use your experience and get your voice heard. If you see an opportunity that interests you but you are not sure about getting involved, feel you need some support or training or have any questions, then please just get in touch with us and we will try and help. If you don’t see an opportunity that you are interested in but have an idea about how you might like to be involved then do please get in touch.
You can email firstname.lastname@example.org or call the team on 01686 628300 or 01597 822191.
The University of Edinburgh and the European Union are currently conducting a project on risk and innovation in mental health services/projects (either provided by statutory bodies or private providers). Find out more and complete a 5-minute survey here. You can download a participant information sheet here.
The National Centre for Mental Health (NCMH) works to learn more about mental illness so that it can contribute to developing better diagnosis, care and treatment for the future.
In order to do this effectively and make a real difference to people’s lives in years to come, NCMH would like you to tell them what you think are the key research areas that mental health research in Wales should focus on.
That’s why they’ve created #TellNCMH – a new online survey that allows you to help shape the direction of mental health research for the future.
You can find out more and complete the survey here.
You can also get involved in the Live Twitter chat on Thursday 21 August, more info here.
Researchers at the University of Liverpool, including Professor Richard Bentall, are interested in finding out what happens when people who speak more than one language have the experience of hearing voices, also known as auditory verbal hallucinations (AVH). You can download further info in English and Welsh, and also Participant Self Referral forms in English and Welsh.
Opinion Research Services (ORS) is interviewing people across Wales about their experiences of secondary mental health services. Information from these interviews is informing the Welsh Government’s review of the Mental Health Measure (Wales) 2010.
If you have direct personal experience of at least one of the following services, ORS would like to hear from you:
Would you be willing to take part? This is an opportunity for you to make an important contribution to the review of services introduced under the Measure.
Telephone interviews are expected to last about half an hour – one interview per participant.
All interviews are entirely confidential and your Informed consent would be requested beforehand.
If this sounds like something you would be interested in contributing to, please get in touch with Freda Lacey by ringing 01597 822191 or emailing email@example.com
Mind are looking for information about peer support projects for adults in Wales experiencing any form of mental distress/ mental illness/ mental health problems. You can find out more, along with a link to a short survey, here.
Participation Cymru has been asked to help facilitate engagement with potential users of a new website called 'Care Wales Online' that is being developed by the Care Council for Wales and the Care and Social Services Inspectorate Wales. We are seeking people who are interested in giving feedback on the website during its development.
Everyone's got's a story what's yours? Have you used any of the Welsh Ambulance Services or NHS Direct Wales? Your story can help us think about the way we work and improve the services we provide for you. More here
The NHS Future Fit programme will focus on the hospital services provided by Shrewsbury & Telford Hospital NHS Trust and Shropshire Community Health NHS Trust. NHS Future Fit website will host timely information and welcome continual feedback as we work through this process. The team will be consulting with patient representatives and there will be lots of opportunities to get involved with Future Fit. More here.
If you are a someone, or close to someone, that has been in contact with the police, and in particular in relation to anti-social behaviour, you are invited to become a member of a research project reference group (PRG) for Powys and North Wales. More here.
Have you experience of being detained and/or being voluntarily or involuntarily an in-patient on a mental health ward? PAVO is looking for volunteers to help run Powys Patients' Council. The role requires a committment of visiting Felindre Ward, Bronllys Hospital, once a month and a senior management meeting, every two months, with some other ad hoc activities/meetings. Lunch and transport expenses are paid. More here
Are you 18-25 and interested in becoming a mentor or do you work with 18-25 year olds who might be? Fine out more here.
We all need support sometimes. Yet too often those who have been helped by benefits get ignored, misrepresented or at worst blamed for their situation. If the millions of us who have needed benefits share our stories - and those who haven't express their support – then together we can change the debate. Share Your Story and Change The Debate here.
Powys and North Wales Vulnerable people and anti-social behaviour project – what is happening here. Want to find out more or get involved contact Freda.firstname.lastname@example.org or call 01597 822 191 and ask for Freda.
Powys teaching Health Board (PtHB) would like to find out what people think of the services provided by mental health resource centres and other mental health charities funded by the Health Board in Powys. If you have used the services of one or more of these organisations, or are a carer of someone who has, there is an online survey you can complete here.
You will need to complete a separate survey for each organisation you wish to give feedback about.
This survey is open all year round.
Diverse Cymru have applied to Comic Relief for funding to employ a BME Mental Health Advocacy worker to work in each of the 7 Health Board areas with the Mental Health Champions. Would you be interested in being part of this unique, dynamic project. Taking part as volunteers, Steering Group members, helping to promote the project, hosting peer advocacy sessions etc? Find out more here.