Many of us have an interest in mental health for one reason and another. For some this interest comes from personal, lived experience. We may have experienced mental distress ourselves or we may have been close to someone else who has. We may have used or be using mental health services or we may be close to someone else who does. Many of us wish to get involved and share our ideas, skills, knowledge, experience and expertise in the hope that we can make things better.
Here you can find out what opportunities there are for you to use your experience and get your voice heard. If you see an opportunity that interests you but you are not sure about getting involved, feel you need some support or training or have any questions, then please just get in touch with us and we will try and help. If you don’t see an opportunity that you are interested in but have an idea about how you might like to be involved then do please get in touch.
You can email jane.cooke(at)pavo.org.uk or call the team on 01686 628300 or 01597 822191.
Are there things you'd like to say to people responsible for the mental health services in Powys? Would you rather have a walk in the countryside and an honest conversation than sit around in a stuffy meeting room with people in suits? Join our ‘Walk, Talk and Listen’ session with senior people from Powys Teaching Health Board – the Big Cheeses! More here.
The White Paper seeks views on proposals covering a number of health and social care issues which may require future legislation. The aim of any new legislation would be to enable organisations and empower citizens. Proposals include the strengthening of local health boards so they function as integrated, accountable, population-based organisations; new duties of candour and quality; areas where health and social care can act more collaboratively; and more effective inspection, regulation and capture of citizens’ voices. Your responses will be considered in developing any new legislation.
Consulting on proposals to:
- strengthen leadership in NHS organisations
- introduce new duties of quality and openness
- strengthen the voice of citizens in the way health and social care is planned and provided
- design a clearer process for service change plans
- improve the legal framework for the inspection and regulation of health services
- establish a new independent body for patient voice and regulation and inspection.
Further information available at:
Closing date for responses is 29 September 2017.
Powys’ Public Service Board (PSB) has now agreed its vision for Powys 2040, based on the evidence and analysis within Powys’ recent Wellbeing Assessment. This, together with a draft Wellbeing Plan based upon the vision and the issues identified in the Assessment, is subject to an ongoing programme of public consultation over the Autumn/Winter.
You can view the PSB’s vision and key objectives within it, and importantly, also give your views upon them, at: http://www.powys.gov.uk/en/community-development/sustainability-and-the-council/powys-well-being-plan/
Feedback received from this survey will help inform the work that is beginning upon a draft of the Wellbeing Plan for Powys based on this vision.
Some questions you might want to consider about the PSB’s vision are:
- Does it reflect the priorities, aspirations and concerns of the people and communities that your community group or organisation works with?
- Does it feel like a blue-print for ‘transformational’ change within Powys?
- Do you think the objectives and aspirations it sets out are the right ones for Powys?
- Does it reflect the key issues gathered in the wellbeing assessment strongly enough (these were: transport and access to services; jobs and economy; and older peoples accommodation) and offer a satisfactory approach to dealing with them?
- Are there important issues facing Powys in the future which you feel the vision omits or doesn’t fully address?
PAVO will be seeking the views of community groups and voluntary organisations in more detail in the coming months on the the draft Wellbeing Plan once it is published, however as a first step we would encourage everyone to look at and respond to the current survey.
Midwives and health visitors practising in Wales are invited to complete this survey about identifying and responding to women with perinatal mental health problems. Joint project of Mind Cymru, National Centre for Mental Health and NSPCC Cymru.
The Children, Young People and Education Committee of Welsh Government would welcome your views on the terms of reference for the inquiry. It is considering whether the review of Children & Adolescent Mental Health Services - the 'Together for Children and Young People Programme' - is on track to deliver the 'step-change' in CAMHS services that is needed. The Committee's Inquiry will consider:
- Specialist CAMHS.
- Transition to Adult Services.
- Links with Education (emotional intelligence and healthy coping mechanisms).
Closing date for responses: 29 September 2017. More here.
Children & Young People's Promises
As part of our work to apply a ‘Child Rights Approach’ within the Welsh Ambulance Services NHS Trust, over the next few months, we will be engaging with Children and Young People (age between 8-18 years of age) to capture their feedback on ‘What they expect when they use any of our services...’, supporting the UN Convention on the Rights of the Child, which includes the ‘right to be heard’.
This feedback, available to give online and via feedback cards, will be used to develop a set of ‘Promises’. These ‘Promises to Children & Young People’ will be shared with our staff so they understand what is important to children and young people when treating or caring for them. We will measure their experiences against the promises.
Feedback is anonymous and can be given even if they haven’t used our services before. This includes 999 emergencies, transport to hospital appointments, the NHS Direct Wales website & telephone service and 111 (if available in the area).
If you work with or represent children and young people and are able to capture their views on our behalf, please email me for feedback cards. Alternatively visit our Children & Young People website ‘The Room’ and scroll down to the ‘Children & Young People’s Promises’ to give feedback online.
The closing date for this consultation is 29th September 2017.
The Restorative Approaches Family Engagement Project is a Welsh Government funded project run by Tros Gynnal Plant. Over the last two and a half years they have delivered free training in Restorative Engagement to Third Sector organisations across Wales. The project is running until the end of September and they can deliver free 'taster' workshops to Third Sector and statutory organisations until the end of the project. If you are interested in receiving further information please email rafep(at)trosgynnalplant.org.uk
Hafan Cymru is carrying out a consultation with potential clients and professionals for the Men's Sheds Cymru Project. This project helps men who are lonely, isolated or just have time on their hands to set-up up a Men's Shed - a community space for men where they can pursue activities, get involved with local projects or just drop in and see what's happening in the local area. This new project will have a focus on men who we haven't yet reached, men in communities without a voice, highly urbanised or very rural communities - anywhere where there could be barriers to engagement, but where a social inclusion initiative would really be of benefit.
If you have been affected by mental health and wellbeing the Welsh Ambulance Services Trust would appreciate your help to enable further development of services as part of the Mental Health Improvement Plan. If you would like to take part in a focus group please contact Isobel Jones, Patient Experience and Community Involvement Coordinator on 01792 776252 Ext. 45444 or email: isobel.jones(at)wales.nhs.uk You can also complete a survey here.
Nottingham Trent University and the University of Liverpool are undertaking a study on schizophrenia and are looking for parents of children (over 18) diagnosed with schizophrenia or schizoaffective disorder.
If you are interested in participating, or want more information about the study, then please see their poster attached here for further detail.
Diverse Cymru regularly respond to consultations from the UK and Welsh Governments, local councils, and Local Health Boards.
Recently there has been a focus on housing. This includes:
- Affordable (social) housing
- Housing options to meet the needs of an ageing population
- Housing for disabled people
- How welfare reform has affected different people
Diverse Cymru is committed to gathering the views of diverse communities in Wales and would be grateful if you could fill in the questionnaire below to help with their response -
Please email the survey to email@example.com or post it to:
Ele Hicks, Diverse Cymru, 307-315 Cowbridge Road East, Cardiff, CF5 1JD
Dementia Services Development Centre Wales is seeking people with dementia, and carers of people with dementia, to take part in a research study about digital life story work. The study will explore if using a digital life storybook - a collection of words, pictures, music and text - can help improve the wellbeing of people with dementia and their carers. Find out more here.
Anonymous online study of self-harm, suicide and emotion.
Researchers at the University of Nottingham and the University of Glasgow are seeking adults to participate in a study aimed at understanding people’s emotional experiences and responses to difficult situations. This includes understanding thoughts and feelings people may have that are related to self-harm. There is some cross-over between the two studies we are running, but you are welcome to take part in both or just one.
The study involves completing an online questionnaire and anyone aged over 16 years is able to take part, regardless of country of residency. Participation will take around 20-25 minutes.
You can take part here
For more information please email here
Serch hynny, mae angen i ni wneud mwy. Os ydych yn siaradwr Cymraeg, hoffem glywed eich barn ar ba rai o'n hadnoddau ar-lein y dylem eu cyfieithu nesaf. Cymerwch funud i gwblhau ein harolwg byr.
NHS Leadership Academy is looking for patients, carers, and service users who are willing to tell their stories about the NHS care they received. The NHS Leadership Academy delivers a wide range of training and development programmes to NHS staff, including clinicians, commissioners, managers. The Academy is supporting our future healthcare leaders to be the best that they can be. Programme participants need to hear about the real experiences of patients, service users, carers, both positive and negative. Understanding real experiences of healthcare is a very powerful way for leaders to understand how the NHS should improve.
Volunteers are asked to share their healthcare experiences with delegates from our courses. Staff will help you to tell your story and to highlight specific examples of what went well and what went wrong. The courses are set in a supportive and confidential environment and you'll take part in face to face discussions with groups of participants (including those in senior positions).
This is a great opportunity for volunteers to support the ongoing improvement of the NHS and all reasonable expenses will be reimbursed. Volunteers will also receive vouchers for their time. You can register your interest online here.
Researchers from the University of Exeter are conducting an international survey on emotion processing in adult survivors of childhood sexual abuse and would like to invite adults who are interested in taking part. More here.
Lancaster University research project to find out if adverse life experiences and early relationships have any impact on experiences that are related to psychosis. This might include experiences such as hearing voices, having unusual beliefs or experiencing paranoia, for example. Find out more and take part in the survey here.
The Centre for Innovative Ageing at Swansea University is carrying out a study that looks into the day-to-day experiences of caring. You will be asked to describe how the onset of dementia in the person you care for has affected you. Participation involves completion of a postal questionnaire. For further information please contact: Gordon Jones by ringing 07976 624 757 or emailing 263556(at)swansea.ac.uk
Darren O'Connell manages Hafal's Appropriate Adult service, which supports vulnerable adults in police custody. For the past five years Hafal has delivered an Appropriate Adult Scheme to vulnerable adults across the South Wales Police authority area. The police have requested Hafal provide a service in the Dyfed Powys area, including stations in Brecon and Newtown.
Hafal is inviting applications from individuals across Mid Wales who have an interest in supporting vulnerable adults through the police custody process. Hafal uses a team of both volunteers and staff (who receive a modest payment) to deliver this service and is seeking to recruit candidates in both categories. This service is delivered 24 hours a day, 7 days a week, 365 days of the year through flexible cover arrangements. You can find out more here, download an application pack here, or email darren.oconnell(at)hafal.org or on ring 07971 970 714.
The University of Edinburgh and the European Union are currently conducting a project on risk and innovation in mental health services/projects (either provided by statutory bodies or private providers). Find out more and complete a 5-minute survey here. You can download a participant information sheet here.
Researchers at the University of Liverpool, including Professor Richard Bentall, are interested in finding out what happens when people who speak more than one language have the experience of hearing voices, also known as auditory verbal hallucinations (AVH). You can download further info in English and Welsh, and also Participant Self Referral forms in English and Welsh.
Have you experience of being detained and/or being voluntarily or involuntarily an in-patient on a mental health ward? PAVO is looking for volunteers to help run Powys Patients' Council. The role requires a committment of visiting Felindre Ward, Bronllys Hospital, once a month and a senior management meeting, every two months, with some other ad hoc activities/meetings. Lunch and transport expenses are paid. More here