Many of us have an interest in mental health for one reason and another. For some this interest comes from personal, lived experience. We may have experienced mental distress ourselves or we may have been close to someone else who has. We may have used or be using mental health services or we may be close to someone else who does. Many of us wish to get involved and share our ideas, skills, knowledge, experience and expertise in the hope that we can make things better.
Here you can find out what opportunities there are for you to use your experience and get your voice heard. If you see an opportunity that interests you but you are not sure about getting involved, feel you need some support or training or have any questions, then please just get in touch with us and we will try and help. If you don’t see an opportunity that you are interested in but have an idea about how you might like to be involved then do please get in touch.
You can email jane.cooke(at)pavo.org.uk or call the team on 01686 628300 or 01597 822191.
The Culture, Welsh Language and Communications Committee are undertaking a poll for future inquiries which includes using the Arts to improve health and wellbeing.
The deadline is 8 October and it only takes a minute to complete. More here plus link to survey.
This work, which is sponsored by the Cabinet Secretary, will seek to co-produce medium term ambitions for unscheduled care services to be delivered consistently across Wales by HBs and Trusts and partners, in line with the ‘quality statements’ action in the “Healthier Wales” plan.
There are two phase engagement plans in place, the first phase will focus on listening to key stakeholders including citizens, staff and professional bodies; and the second phase will involve informal consultation on a draft framework.
Tell us about your experiences: an invitation
When something unexpected happens to me: Developing a policy framework for unscheduled care
Please see the links to the survey below -
The Commons Select Committee has launched an inquiry to consider whether LGBT health care provisions are adequate. You can take part in the consultation here. The deadline for submissions is 5 October 2018.
The Patients’ Council was invited to a meeting at the Felindre Ward at Bronllys Hospital recently to engage about a consultation that was recently launched by the Welsh Government dealing with a prospective smoking ban in all hospital grounds. As this will include acute mental health in-patient wards such as the Felindre Ward, it is important that people associated with the ward(s) voice their views in relation to this consultation.
If you have lived experience of an acute mental health ward, and would like to contribute to the consultation please email owen.griffkin(at)pavo.org.uk with your comments or for more information. More here.
Many people who die through suicide have contact with their GP or other health professionals in the weeks before their death, and early help could give people the support they need to save their life. In partnership with Samaritans, the Centre for Mental Health is exploring what early help is being offered by primary care services to people who are having suicidal thoughts or feelings but are not at immediate risk or have a diagnosable mental illness. If you have information/examples to share, get in touch.
Wales Audit Office are carrying out a review of the effectiveness of social services in Wales.
If you’re a carer and receive or have requested support from your Local Authority, Wales Audit Office would love to hear from you. If you’d like to be involved, Wales Audit Office will arrange a 15-minute telephone interview to ask about your experiences.
Wales Audit Office also want to hear from third-sector organisations working with and supporting social services. They would be particularly interested to hear your thoughts on the effectiveness of client and carer assessment processes used by social services. Information will be collected through an on-line survey which should take no longer than 20 minutes to complete.
For more information and to get involved, please contact Wales Audit Office on 02920 320 500 or at council.studies(at)audit.wales. You can choose to participate in the review in either English or Welsh. All information collected will be held in the strictest confidence and no individuals will be named in the final report.
Cara Williams, a PhD student at Lancaster University is conducting research into disabled people’s experience of working for small and medium size organisations (SMEs), and the SME experience of employing disabled people in their workplace.
She is looking to recruit twenty disabled people and twenty small and medium size organisations to take part in interviews.
If you are interested, you can read Cara’s blog to know more about this research here https://disabledpeopleworksmes.wordpress.com/, contact her by email c.williams10(at)lancaster.ac.uk, or find her on Twitter @Cara_J_Williams
Have you been affected by suicide? Are you a suicide survivor? The Centre for Mental Health and Safety at the University of Manchester is conducting research on the impact of suicide on people. Researchers are working with the Support after Suicide Partnership, a growing alliance of national organisations offering support to those bereaved or affected by suicide. Online survey here.
The volunteer individual reps who sit on the Powys Mental Health Planning and Development Partnership are looking for people who access mental health services in Powys to complete a short, anonymous survey. The results of the survey will be vital in ensuring that user voice is heard by the decision makers. The reps have all accessed mental health services in Powys, or care for someone who has, and their views are vital to improving these service. By filling in the questionnaire they will have more of an idea of other people's experiences and provide a fuller picture of issues across the county.
The survey is easy to fill in online and is totally anonymous. You can access it here.
There is also a paper version if you have issues accessing the online version. To request a paper version please contact the Powys Mental Health Team 01686 628300 or 01597 822191 or email us mentalhealth(at)pavo.org.uk. The survey is also available in Welsh.
The Powys Mental Health Planning & Development Partnership - the multi-agency group which oversees development of mental health services in Powys - has drawn up a draft dignity charter working closely with individuals who use services. What do you think? We would like your feedback.
Please send any feedback to mentalhealth(at)pavo.org.uk or ringing 01597 822191 and speak to someone in the mental health team.
Powys’ Public Service Board (PSB) has now agreed its vision for Powys 2040, based on the evidence and analysis within Powys’ recent Wellbeing Assessment. This, together with a draft Wellbeing Plan based upon the vision and the issues identified in the Assessment, is subject to an ongoing programme of public consultation over the Autumn/Winter.
You can view the PSB’s vision and key objectives within it, and importantly, also give your views upon them, at: http://www.powys.gov.uk/en/community-development/sustainability-and-the-council/powys-well-being-plan/
Feedback received from this survey will help inform the work that is beginning upon a draft of the Wellbeing Plan for Powys based on this vision.
Some questions you might want to consider about the PSB’s vision are:
- Does it reflect the priorities, aspirations and concerns of the people and communities that your community group or organisation works with?
- Does it feel like a blue-print for ‘transformational’ change within Powys?
- Do you think the objectives and aspirations it sets out are the right ones for Powys?
- Does it reflect the key issues gathered in the wellbeing assessment strongly enough (these were: transport and access to services; jobs and economy; and older peoples accommodation) and offer a satisfactory approach to dealing with them?
- Are there important issues facing Powys in the future which you feel the vision omits or doesn’t fully address?
PAVO will be seeking the views of community groups and voluntary organisations in more detail in the coming months on the the draft Wellbeing Plan once it is published, however as a first step we would encourage everyone to look at and respond to the current survey.
If you have been affected by mental health and wellbeing the Welsh Ambulance Services Trust would appreciate your help to enable further development of services as part of the Mental Health Improvement Plan. If you would like to take part in a focus group please contact Isobel Jones, Patient Experience and Community Involvement Coordinator on 01792 776252 Ext. 45444 or email: isobel.jones(at)wales.nhs.uk You can also complete a survey here.
Nottingham Trent University and the University of Liverpool are undertaking a study on schizophrenia and are looking for parents of children (over 18) diagnosed with schizophrenia or schizoaffective disorder.
If you are interested in participating, or want more information about the study, then please see their poster attached here for further detail.
Dementia Services Development Centre Wales is seeking people with dementia, and carers of people with dementia, to take part in a research study about digital life story work. The study will explore if using a digital life storybook - a collection of words, pictures, music and text - can help improve the wellbeing of people with dementia and their carers. Find out more here.
Anonymous online study of self-harm, suicide and emotion.
Researchers at the University of Nottingham and the University of Glasgow are seeking adults to participate in a study aimed at understanding people’s emotional experiences and responses to difficult situations. This includes understanding thoughts and feelings people may have that are related to self-harm. There is some cross-over between the two studies we are running, but you are welcome to take part in both or just one.
The study involves completing an online questionnaire and anyone aged over 16 years is able to take part, regardless of country of residency. Participation will take around 20-25 minutes.
You can take part here
For more information please email here
Serch hynny, mae angen i ni wneud mwy. Os ydych yn siaradwr Cymraeg, hoffem glywed eich barn ar ba rai o'n hadnoddau ar-lein y dylem eu cyfieithu nesaf. Cymerwch funud i gwblhau ein harolwg byr.
NHS Leadership Academy is looking for patients, carers, and service users who are willing to tell their stories about the NHS care they received. The NHS Leadership Academy delivers a wide range of training and development programmes to NHS staff, including clinicians, commissioners, managers. The Academy is supporting our future healthcare leaders to be the best that they can be. Programme participants need to hear about the real experiences of patients, service users, carers, both positive and negative. Understanding real experiences of healthcare is a very powerful way for leaders to understand how the NHS should improve.
Volunteers are asked to share their healthcare experiences with delegates from our courses. Staff will help you to tell your story and to highlight specific examples of what went well and what went wrong. The courses are set in a supportive and confidential environment and you'll take part in face to face discussions with groups of participants (including those in senior positions).
This is a great opportunity for volunteers to support the ongoing improvement of the NHS and all reasonable expenses will be reimbursed. Volunteers will also receive vouchers for their time. You can register your interest online here.
Researchers from the University of Exeter are conducting an international survey on emotion processing in adult survivors of childhood sexual abuse and would like to invite adults who are interested in taking part. More here.
Lancaster University research project to find out if adverse life experiences and early relationships have any impact on experiences that are related to psychosis. This might include experiences such as hearing voices, having unusual beliefs or experiencing paranoia, for example. Find out more and take part in the survey here.
The Centre for Innovative Ageing at Swansea University is carrying out a study that looks into the day-to-day experiences of caring. You will be asked to describe how the onset of dementia in the person you care for has affected you. Participation involves completion of a postal questionnaire. For further information please contact: Gordon Jones by ringing 07976 624 757 or emailing 263556(at)swansea.ac.uk
Darren O'Connell manages Hafal's Appropriate Adult service, which supports vulnerable adults in police custody. For the past five years Hafal has delivered an Appropriate Adult Scheme to vulnerable adults across the South Wales Police authority area. The police have requested Hafal provide a service in the Dyfed Powys area, including stations in Brecon and Newtown.
Hafal is inviting applications from individuals across Mid Wales who have an interest in supporting vulnerable adults through the police custody process. Hafal uses a team of both volunteers and staff (who receive a modest payment) to deliver this service and is seeking to recruit candidates in both categories. This service is delivered 24 hours a day, 7 days a week, 365 days of the year through flexible cover arrangements. You can find out more here, download an application pack here, or email darren.oconnell(at)hafal.org or on ring 07971 970 714.
The University of Edinburgh and the European Union are currently conducting a project on risk and innovation in mental health services/projects (either provided by statutory bodies or private providers). Find out more and complete a 5-minute survey here. You can download a participant information sheet here.
Researchers at the University of Liverpool, including Professor Richard Bentall, are interested in finding out what happens when people who speak more than one language have the experience of hearing voices, also known as auditory verbal hallucinations (AVH). You can download further info in English and Welsh, and also Participant Self Referral forms in English and Welsh.
Have you experience of being detained and/or being voluntarily or involuntarily an in-patient on a mental health ward? PAVO is looking for volunteers to help run Powys Patients' Council. The role requires a committment of visiting Felindre Ward, Bronllys Hospital, once a month and a senior management meeting, every two months, with some other ad hoc activities/meetings. Lunch and transport expenses are paid. More here
Community Well-being Worker Hours: 16 hrs per week Salary: £18,870 pro rata Location: Brecon and outreach centres Contract: Fixed term to March 2019 subject to further funding Contact: Michael Power on 01874 611529 or email info(at)breconmind.org.uk Closing date Fr