Many of us have an interest in mental health for one reason and another. For some this interest comes from personal, lived experience. We may have experienced mental distress ourselves or we may have been close to someone else who has. We may have used or be using mental health services or we may be close to someone else who does. Many of us wish to get involved and share our ideas, skills, knowledge, experience and expertise in the hope that we can make things better.
Here you can find out what opportunities there are for you to use your experience and get your voice heard. If you see an opportunity that interests you but you are not sure about getting involved, feel you need some support or training or have any questions, then please just get in touch with us and we will try and help. If you don’t see an opportunity that you are interested in but have an idea about how you might like to be involved then do please get in touch.
You can email jane.cooke(at)pavo.org.uk or call the team on 01686 628300 or 01597 822191.
Do you know about PIP - the new system replacing Disability Living Allowance? Do you think changes should be made to improve the process used to assess people to decide if they are still eligible to receive support? A young disabled person has set up a petition: Demand a change to Personal Independence Payment. More here.
If you have been affected by mental health and wellbeing the Welsh Ambulance Services Trust would appreciate your help to enable further development of services as part of the Mental Health Improvement Plan. If you would like to take part in a focus group please contact Isobel Jones, Patient Experience and Community Involvement Coordinator on 01792 776252 Ext. 45444 or email: isobel.jones(at)wales.nhs.uk You can also complete a survey here.
Nottingham Trent University and the University of Liverpool are undertaking a study on schizophrenia and are looking for parents of children (over 18) diagnosed with schizophrenia or schizoaffective disorder.
If you are interested in participating, or want more information about the study, then please see their poster attached here for further detail.
Over the next few weeks Community Health Councils (CHCs) across Wales will be asking people whose lives have been touched by dementia, or anyone who is a care giver, one simple question:
What could the NHS do better to support people, as well as their families and their carers, living with dementia?
Yn ystod yr wythnosau nesaf bydd Cynghorau Iechyd Cymuned ar hyd a lled Cymru yn gofyn un cwestiwn syml i bobl sydd wedi profi dementia yn eu bywydau, neu i’r rhai hynny sy’n rhoi gofal iddynt, sef:
Beth fedrai’r GIG ei wneud yn well i roi cefnogaeth i bobl sy’n byw gyda dementia yn ogystal â’u teuluoedd a’u gofalwyr?
People can tell us their “One Simple Thing” suggestion by using the following ways to contact us;
Email - yourvoice(at)waleschc.org.uk
Dedicated Answerphone – 01248 679284 – Choose Option 4 SMS/Text
Write to us at ‘One Simple Thing’ – CHCs in Wales C/O Unit 11, Chestnut Court, Parc Menai, Bangor. LL57 4FH
E-bost - yourvoice(at)waleschc.org.uk
Ffôn Ateb benodol – 01248 679284 – Dewiswch Opsiwn 4 SMS/Tecst
Cysylltwch a ni at ‘Un Peth Syml’ – CICau yng Nghymru, C/O Uned 11, Llys Castan, Parc Menai, Bangor, LL57 4FH
Powys Teaching Health Board is asking for your views on the future model for mental health services in North Powys (including the Dementia Home Treatment Team and Fan Gorau).
This follows the decision in June 2016 to temporarily close the Fan Gorau inpatient assessment unit at the Montgomery County Infirmary in Newtown on safety grounds due to significant challenges in maintaining safe staffing 24 hours a day, seven days a week.
Through this engagement they are particularly keen to hear from:
- People who have experienced the new Dementia Home Treatment Service and their families & carers - about your experiences of the services, what worked and what could be improved
- People with dementia and their family and carers who may need to call on this type of service – about your hopes and concerns
- The wider public and stakeholders in Montgomeryshire – about your perceptions of the service, and your hopes for the future
- Partners in the planning and delivery of mental health services – about how we can continue to work together to provide the best possible safe & sustainable services for people with dementia in Montgomeryshire
Further information is available here and the engagement period continues to 31 March 2017.
The Welsh Government is seeking your views on developing and implementing a national dementia strategy, 'Together for a Dementia Friendly Wales 2017 – 2022'. The consultation document can be found here
A copy of the response form can be downloaded here and should be submitted before 3rd April, 2017 to mentalhealthandvulnerablegroups(at)wales.gsi.gov.uk
For further information please see their website here
The Health, Social Care and Sport Committee (National Assembly for Wales) has agreed to undertake an inquiry into loneliness and isolation. To take part please click on the link here
The closing date for responses is 10 March 2017.
The Welsh Ambulance Service has visited many community groups supporting individuals with mental health and wellbeing concerns as well as their carers, so a survey has been developed to gather more information about what is important to these groups to enable WAST to improve its services. The survey is available here.
Diverse Cymru regularly respond to consultations from the UK and Welsh Governments, local councils, and Local Health Boards.
Recently there has been a focus on housing. This includes:
- Affordable (social) housing
- Housing options to meet the needs of an ageing population
- Housing for disabled people
- How welfare reform has affected different people
Diverse Cymru is committed to gathering the views of diverse communities in Wales and would be grateful if you could fill in the questionnaire below to help with their response -
Please email the survey to firstname.lastname@example.org or post it to:
Ele Hicks, Diverse Cymru, 307-315 Cowbridge Road East, Cardiff, CF5 1JD
Dementia Services Development Centre Wales is seeking people with dementia, and carers of people with dementia, to take part in a research study about digital life story work. The study will explore if using a digital life storybook - a collection of words, pictures, music and text - can help improve the wellbeing of people with dementia and their carers. Find out more here.
Anonymous online study of self-harm, suicide and emotion.
Researchers at the University of Nottingham and the University of Glasgow are seeking adults to participate in a study aimed at understanding people’s emotional experiences and responses to difficult situations. This includes understanding thoughts and feelings people may have that are related to self-harm. There is some cross-over between the two studies we are running, but you are welcome to take part in both or just one.
The study involves completing an online questionnaire and anyone aged over 16 years is able to take part, regardless of country of residency. Participation will take around 20-25 minutes.
You can take part here
For more information please email here
Serch hynny, mae angen i ni wneud mwy. Os ydych yn siaradwr Cymraeg, hoffem glywed eich barn ar ba rai o'n hadnoddau ar-lein y dylem eu cyfieithu nesaf. Cymerwch funud i gwblhau ein harolwg byr.
When the Social Services and Well-being (Wales) Act 2014 came into force on 6 April 2016, it brought with it important new rights for carers in Wales. If you are a carer are these new rights making life better for you? You can complete a Carers Wales survey here.
NHS Leadership Academy is looking for patients, carers, and service users who are willing to tell their stories about the NHS care they received. The NHS Leadership Academy delivers a wide range of training and development programmes to NHS staff, including clinicians, commissioners, managers. The Academy is supporting our future healthcare leaders to be the best that they can be. Programme participants need to hear about the real experiences of patients, service users, carers, both positive and negative. Understanding real experiences of healthcare is a very powerful way for leaders to understand how the NHS should improve.
Volunteers are asked to share their healthcare experiences with delegates from our courses. Staff will help you to tell your story and to highlight specific examples of what went well and what went wrong. The courses are set in a supportive and confidential environment and you'll take part in face to face discussions with groups of participants (including those in senior positions).
This is a great opportunity for volunteers to support the ongoing improvement of the NHS and all reasonable expenses will be reimbursed. Volunteers will also receive vouchers for their time. You can register your interest online here.
Public Health Network Cymru is currently looking for members who are enthusiastic about the work of the Network to join the Board to advise on its direction and development and to provide advice and information on their area of expertise or interest.
If you are interested or would like any further information please contact by
Telephone: 029 2184 1943
Researchers from the University of Exeter are conducting an international survey on emotion processing in adult survivors of childhood sexual abuse and would like to invite adults who are interested in taking part. More here.
SCIE (Social Care Institute for Excellence) is planning a project on the oral history of independent living in the UK. "The funder we are looking at for this requires projects to have a strong input from volunteers so we are looking to recruit a pool of disabled people/service users to work as interviewers for the project."
"We will be providing full training in oral history interviewing and meeting all expenses and support costs. The project would be based in London but there is likely to be work all round the country.
We can’t be certain of getting the funding for the project but we need to see if we can get a group of volunteers together before we can go further with the bid."
Lancaster University research project to find out if adverse life experiences and early relationships have any impact on experiences that are related to psychosis. This might include experiences such as hearing voices, having unusual beliefs or experiencing paranoia, for example. Find out more and take part in the survey here.
The Centre for Innovative Ageing at Swansea University is carrying out a study that looks into the day-to-day experiences of caring. You will be asked to describe how the onset of dementia in the person you care for has affected you. Participation involves completion of a postal questionnaire. For further information please contact: Gordon Jones by ringing 07976 624 757 or emailing 263556(at)swansea.ac.uk
Self Injury Support and Cardiff University are working to develop a mobile phone app for people who self harm and are looking for people to get involved. More here.
Darren O'Connell manages Hafal's Appropriate Adult service, which supports vulnerable adults in police custody. For the past five years Hafal has delivered an Appropriate Adult Scheme to vulnerable adults across the South Wales Police authority area. The police have requested Hafal provide a service in the Dyfed Powys area, including stations in Brecon and Newtown.
Hafal is inviting applications from individuals across Mid Wales who have an interest in supporting vulnerable adults through the police custody process. Hafal uses a team of both volunteers and staff (who receive a modest payment) to deliver this service and is seeking to recruit candidates in both categories. This service is delivered 24 hours a day, 7 days a week, 365 days of the year through flexible cover arrangements. You can find out more here, download an application pack here, or email darren.oconnell(at)hafal.org or on ring 07971 970 714.
The University of Edinburgh and the European Union are currently conducting a project on risk and innovation in mental health services/projects (either provided by statutory bodies or private providers). Find out more and complete a 5-minute survey here. You can download a participant information sheet here.
Researchers at the University of Liverpool, including Professor Richard Bentall, are interested in finding out what happens when people who speak more than one language have the experience of hearing voices, also known as auditory verbal hallucinations (AVH). You can download further info in English and Welsh, and also Participant Self Referral forms in English and Welsh.
Have you experience of being detained and/or being voluntarily or involuntarily an in-patient on a mental health ward? PAVO is looking for volunteers to help run Powys Patients' Council. The role requires a committment of visiting Felindre Ward, Bronllys Hospital, once a month and a senior management meeting, every two months, with some other ad hoc activities/meetings. Lunch and transport expenses are paid. More here