Many of us have an interest in mental health for one reason and another. For some this interest comes from personal, lived experience. We may have experienced mental distress ourselves or we may have been close to someone else who has. We may have used or be using mental health services or we may be close to someone else who does. Many of us wish to get involved and share our ideas, skills, knowledge, experience and expertise in the hope that we can make things better.
Here you can find out what opportunities there are for you to use your experience and get your voice heard. If you see an opportunity that interests you but you are not sure about getting involved, feel you need some support or training or have any questions, then please just get in touch with us and we will try and help. If you don’t see an opportunity that you are interested in but have an idea about how you might like to be involved then do please get in touch.
You can email jane.cooke(at)pavo.org.uk or call the team on 01686 628300 or 01597 822191.
A consultation being carried out by the Department of Health of the UK Government. "Many disabled people and people with long-term health conditions already work and many more want access to the benefits that work can bring. We want to understand how to improve the system to make this possible". Closing date: 17 February 2017. More here.
Health boards across Wales want to hear your views on what is important to you.
Across Wales each year, hundreds of thousands of patients are provided with advice, reassurance, treatment and health monitoring by NHS Wales.
Many of these will include a visit to a hospital, to have tests or to see a clinician who is part of a specialist team, these are often referred to outpatient appointments. Many patients will not need any further visits for specialist clinical care after their first outpatient visit.
People working in outpatients believe that there are opportunities in all the issues outlined above, but they want to hear what you think about the ideas.
To help them do this, please could you provide them with your views by completing a short survey Please respond by 30th December 2016.
Powys County Council are consulting on a number of options relating to the future delivery of day time activities for older people. Please see the link to their website here where you can read the summary consultation document and complete a survey.
A group consultation workshop will take place on the 25th October 2016 at Hafod a Hendre, Royal Welsh Showground, Builth Wells from 1.00 pm - 4.30 pm. If you would like to attend the workshop please can you book by telephone 01597 827507 or email here
As one of the requirements of the Wellbeing of Future Generations (Wales) Act 2015, Powys' Public Service Board (PSB) is required to prepare an 'Area Plan' which will set out the key priorities and changes for local public services in Powys. This 'Area Plan' will supersede the existing 'One Powys Plan'.
This provides a crucial opportunity for voluntary organisations and community groups to influence the priorities set for Powys so that they meet the needs of the individuals and communities you work with.
The actions that will eventually be included in the Area Plan have to be based around evidence of need from Powys citizens and communities. This evidence is currently being sought and compiled.
If your organisation, or the people it supports, have views about the future needs for public services in Powys, please complete the form below and return it to business_intelligence@powys.<wbr />gov.uk
The draft wellbeing assessment will be prepared by November 2016, and will then be subject to further scrutiny and challenge at two stakeholder days, on 15 and 16 November 2016 at the Royal Welsh Showground, Builth Wells. You can book to attend either of these days at
Diverse Cymru regularly respond to consultations from the UK and Welsh Governments, local councils, and Local Health Boards.
Recently there has been a focus on housing. This includes:
- Affordable (social) housing
- Housing options to meet the needs of an ageing population
- Housing for disabled people
- How welfare reform has affected different people
Diverse Cymru is committed to gathering the views of diverse communities in Wales and would be grateful if you could fill in the questionnaire below to help with their response -
Please email the survey to firstname.lastname@example.org or post it to:
Ele Hicks, Diverse Cymru, 307-315 Cowbridge Road East, Cardiff, CF5 1JD
Dementia Services Development Centre Wales is seeking people with dementia, and carers of people with dementia, to take part in a research study about digital life story work. The study will explore if using a digital life storybook - a collection of words, pictures, music and text - can help improve the wellbeing of people with dementia and their carers. Find out more here.
Anonymous online study of self-harm, suicide and emotion.
Researchers at the University of Nottingham and the University of Glasgow are seeking adults to participate in a study aimed at understanding people’s emotional experiences and responses to difficult situations. This includes understanding thoughts and feelings people may have that are related to self-harm. There is some cross-over between the two studies we are running, but you are welcome to take part in both or just one.
The study involves completing an online questionnaire and anyone aged over 16 years is able to take part, regardless of country of residency. Participation will take around 20-25 minutes.
You can take part here
For more information please email here
Serch hynny, mae angen i ni wneud mwy. Os ydych yn siaradwr Cymraeg, hoffem glywed eich barn ar ba rai o'n hadnoddau ar-lein y dylem eu cyfieithu nesaf. Cymerwch funud i gwblhau ein harolwg byr.
When the Social Services and Well-being (Wales) Act 2014 came into force on 6 April 2016, it brought with it important new rights for carers in Wales. If you are a carer are these new rights making life better for you? You can complete a Carers Wales survey here.
NHS Leadership Academy is looking for patients, carers, and service users who are willing to tell their stories about the NHS care they received. The NHS Leadership Academy delivers a wide range of training and development programmes to NHS staff, including clinicians, commissioners, managers. The Academy is supporting our future healthcare leaders to be the best that they can be. Programme participants need to hear about the real experiences of patients, service users, carers, both positive and negative. Understanding real experiences of healthcare is a very powerful way for leaders to understand how the NHS should improve.
Volunteers are asked to share their healthcare experiences with delegates from our courses. Staff will help you to tell your story and to highlight specific examples of what went well and what went wrong. The courses are set in a supportive and confidential environment and you'll take part in face to face discussions with groups of participants (including those in senior positions).
This is a great opportunity for volunteers to support the ongoing improvement of the NHS and all reasonable expenses will be reimbursed. Volunteers will also receive vouchers for their time. You can register your interest online here.
Public Health Network Cymru is currently looking for members who are enthusiastic about the work of the Network to join the Board to advise on its direction and development and to provide advice and information on their area of expertise or interest.
If you are interested or would like any further information please contact by
Telephone: 029 2184 1943
Researchers from the University of Exeter are conducting an international survey on emotion processing in adult survivors of childhood sexual abuse and would like to invite adults who are interested in taking part. More here.
SCIE (Social Care Institute for Excellence) is planning a project on the oral history of independent living in the UK. "The funder we are looking at for this requires projects to have a strong input from volunteers so we are looking to recruit a pool of disabled people/service users to work as interviewers for the project."
"We will be providing full training in oral history interviewing and meeting all expenses and support costs. The project would be based in London but there is likely to be work all round the country.
We can’t be certain of getting the funding for the project but we need to see if we can get a group of volunteers together before we can go further with the bid."
Lancaster University research project to find out if adverse life experiences and early relationships have any impact on experiences that are related to psychosis. This might include experiences such as hearing voices, having unusual beliefs or experiencing paranoia, for example. Find out more and take part in the survey here.
The Centre for Innovative Ageing at Swansea University is carrying out a study that looks into the day-to-day experiences of caring. You will be asked to describe how the onset of dementia in the person you care for has affected you. Participation involves completion of a postal questionnaire. For further information please contact: Gordon Jones by ringing 07976 624 757 or emailing 263556(at)swansea.ac.uk
Self Injury Support and Cardiff University are working to develop a mobile phone app for people who self harm and are looking for people to get involved. More here.
Darren O'Connell manages Hafal's Appropriate Adult service, which supports vulnerable adults in police custody. For the past five years Hafal has delivered an Appropriate Adult Scheme to vulnerable adults across the South Wales Police authority area. The police have requested Hafal provide a service in the Dyfed Powys area, including stations in Brecon and Newtown.
Hafal is inviting applications from individuals across Mid Wales who have an interest in supporting vulnerable adults through the police custody process. Hafal uses a team of both volunteers and staff (who receive a modest payment) to deliver this service and is seeking to recruit candidates in both categories. This service is delivered 24 hours a day, 7 days a week, 365 days of the year through flexible cover arrangements. You can find out more here, download an application pack here, or email darren.oconnell(at)hafal.org or on ring 07971 970 714.
The University of Edinburgh and the European Union are currently conducting a project on risk and innovation in mental health services/projects (either provided by statutory bodies or private providers). Find out more and complete a 5-minute survey here. You can download a participant information sheet here.
Researchers at the University of Liverpool, including Professor Richard Bentall, are interested in finding out what happens when people who speak more than one language have the experience of hearing voices, also known as auditory verbal hallucinations (AVH). You can download further info in English and Welsh, and also Participant Self Referral forms in English and Welsh.
Everyone's got's a story what's yours? Have you used any of the Welsh Ambulance Services or NHS Direct Wales? Your story can help us think about the way we work and improve the services we provide for you. More here
Have you experience of being detained and/or being voluntarily or involuntarily an in-patient on a mental health ward? PAVO is looking for volunteers to help run Powys Patients' Council. The role requires a committment of visiting Felindre Ward, Bronllys Hospital, once a month and a senior management meeting, every two months, with some other ad hoc activities/meetings. Lunch and transport expenses are paid. More here